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目的描述乳腺癌患者信息接收的实际体验,探索信息对乳腺癌患者的作用及影响其信息接收的相关因素。方法采用立意抽样法选取8例乳腺癌患者和8例乳腺专业医护人员进行半结构式访谈,采用Colaizzi 7步分析法分析资料。结果提炼出4个与乳腺癌患者信息接收相关的主题,即信息接收不足、信息作用的两面性、医患沟通不佳对信息接收的影响、患者自身因素对信息接收的影响。结论乳腺癌患者存在多方面的信息接收不足,建议医护人员重视信息支持工作,通过专业化、个体化信息支持避免或减少负面信息,从而改善患者的治疗体验、更好地配合诊疗工作。
Objective To describe the actual experience of breast cancer patients receiving information and to explore the role of information in breast cancer patients and related factors that affect their information reception. Methods Eight cases of breast cancer patients and 8 cases of breast health professionals were interviewed by semi-structured interviews using the method of deliberate sampling. The data were analyzed by Colaizzi 7-step analysis. Results Four subjects related to the information reception of breast cancer patients were extracted, namely the insufficient information reception, the duality of the information effect, the influence of poor communication between doctors and patients on the information reception, and the influence of the patient’s own factors on the information reception. Conclusions Breast cancer patients have insufficient information reception. It is suggested that medical staff should pay attention to information support and avoid or reduce negative information through specialized and personalized information so as to improve the patient’s treatment experience and better meet the diagnosis and treatment.