“蓝嘴唇”是肺动脉高压的俗称,可以说是心血管疾病中的癌症。蓝嘴唇患者多为年轻人,他们看上去与常人无异,实际上生活艰辛:走几步路、说几句话就喘不过气,随时可能丧命。“80后”女孩黄欢,就是一位“蓝嘴唇”。7年前,疾病突然降临,改变了她的生活,也催生了中国第一个肺动脉高压公益组织——爱稀客的诞生。20岁出头,黄欢就凭借良好的英语水平进入一家世界500强企业,生活令人艳羡。但一切都在2005年12月改变,她被医生告知患上一种罕见而严重的肺血管疾病,随时可能猝死,确诊后平均生存寿命仅2.8年。因长期缺氧导致嘴唇紫绀,因此,国外把这种病患叫做“蓝嘴唇”。为了活下去,黄欢开始服用一种刚进入国内的药物,每月要49500元。很快,她攒的10万元就化作了一颗颗小药丸。 “Blue lips ” is commonly known as pulmonary hypertension, can be said that cancer in cardiovascular disease. Blue lips mostly young people, they seem no different from ordinary people, in fact, life is difficult: take a few steps, say a few words on the breath, may die at any time. “After 80 ” girl Huang Huan, is a “blue lips ”. Seven years ago, the sudden illness came and changed her life. She also gave birth to the first non-profit pulmonary hypertension organization in China. In his early 20s, Huang Huan entered the world’s top 500 with good English skills and envied his life. But everything changed in December 2005, she was told by a doctor suffering from a rare and severe pulmonary vascular disease, which could cause sudden death at any time. The average life expectancy after diagnosis was only 2.8 years. Due to long-term hypoxia led to cyanosis of the lips, therefore, this disease abroad is called “blue lips ”. In order to survive, Huang Huan began taking a drug just entering the country, 49,500 yuan per month. Soon, she saved 100000 yuan into a pellet.