终末期肾病是一种费用巨大的灾难性疾病。公费、劳保单位不堪负担,自费病人更是不敢问津,患者治疗无门,供需矛盾十分突出,社会舆论反响极大。在上海市科委的支持下,我们成立了“终末期肾病治疗的成本效果分析及建立医疗基金”课题组,对终末期肾病治疗病人的社会学特征作了专题调查。 End-stage renal disease is a costly catastrophic disease. Public funds and labor protection units are unbearably burdened, patients at their own expense are afraid to ask for treatment, patients have no treatment, the contradiction between supply and demand is very prominent, and public opinion has a great response. With the support of the Shanghai Science and Technology Commission, we established the “Cost Effect Analysis of End-stage Renal Disease Treatment and Established a Medical Fund” task group to conduct a special survey on the sociological characteristics of patients with end-stage renal disease treatment.