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目的探讨白血病患儿治疗期间生活质量与应对方式及亲属教养方式的相关性,为提高患儿生活质量提供实验依据。方法随机选取2014年1月-2016年1月徐州医科大学附属徐州儿童医院血液科78例白血病患儿,采用儿童生存质量普适性核心量表(Peds QLTM4.0)、慢性病患儿应对方式量表(CODI)与亲属教养方式评价量表(EMBU)进行调查。结果患儿在治疗期间生活质量普遍较低。白血病患儿生存质量与应对方式接受、远离得分呈正相关(r=0.27~0.53,r=0.31~0.44,P<0.05),与负性情绪得分(r=-0.26~-0.58,P<0.05)呈负相关,与双亲惩罚严厉得分(r=-0.26~-0.39,P<0.05)、拒绝否认得分(r=-0.35~-0.54,P<0.05)、过度保护得分(r=-0.37~-0.54,P<0.05)呈负相关。结论白血病患儿的生活质量与应对方式及亲属教养具有一定的相关性,在临床护理中应当让患儿学会接受与远离的应对方式,调节患儿与双亲的关系,避免双亲出现过分拒绝或过分保护行为。
Objective To investigate the correlation between quality of life, coping style and parental rearing patterns in children with leukemia and to provide experimental evidence for improving the quality of life in children. Methods From January 2014 to January 2016, 78 children with leukemia at Department of Hematology, Xuzhou Children’s Hospital affiliated to Xuzhou Medical University were enrolled in this study. The Peds QLTM4.0, Table (CODI) and relatives parenting style evaluation scale (EMBU) were investigated. Results The children’s quality of life was generally low during treatment. There was a positive correlation between quality of life and coping style of children with leukemia and away from the scores (r = 0.27-0.53, r = 0.31-0.44, P <0.05), and negative emotion scores (r = -0.26-0.58, (R = -0.26 ~ -0.39, P <0.05), rejecting denial score (r = -0.35 ~ -0.54, P <0.05), and overprotected score (r = -0.37 ~ 0.54, P <0.05) was negatively correlated. Conclusion The quality of life of children with leukemia and coping styles and relatives upbringing has some relevance in clinical nursing should allow children to learn to accept and stay away from coping styles to regulate the relationship between children and parents to avoid excessive rejection of parents or excessive Protect behavior.