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[目的]了解重症地中海贫血家长在陪伴患儿治疗、康复过程中的真实心理感受,为临床护理人员对患儿家长进行心理辅导提供参考。[方法]通过访谈形式,访问24名重症地中海贫血患儿家长,将获得的资料进行分析、整理,提出主题。[结果]重症地中海贫血患儿家长在子女治疗过程中承受着巨大的心理压力和经济压力,表现过程为初诊时的震惊、困惑、拒绝,逐渐转变成无奈接受,对未来持不乐观心理。[结论]重症地中海贫血患儿家长需要深切人文关怀和情感支持,护理人员应采取针对性的护理措施对每个心理阶段患儿家长进行护理干预,帮助、指导家长寻求合适支持系统,提高生活质量,树立积极态度。
[Objective] To understand the true psychological feelings of parents with severe thalassemia in companion children’s rehabilitation and rehabilitation, and provide references for clinical nursing staff to provide psychological counseling to their parents. [Methods] Through interview, parents of 24 children with severe thalassemia were interviewed, the information obtained was analyzed, sorted out, and the theme was proposed. [Results] Parents of children with severe thalassemia disease under tremendous psychological pressure and economic pressure during the treatment of their children. The performance process was shocked, puzzled and rejected at the first visit, and gradually turned into helplessness and optimistic about the future. [Conclusion] Parents of children with severe thalassemia need deep humane care and emotional support. Nurses should take appropriate nursing measures to provide nursing intervention for parents of children in each psychological stage, and help and guide parents to seek suitable support system and improve quality of life , Establish a positive attitude.