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【目的】探索哮喘儿童对其主要照顾者及其家庭的影响,为临床干预和健康教育提供理论依据。【方法】运用儿童生存质量量表体系(PedsQLTM)的家庭影响模块对哮喘儿童主要照顾者进行问卷调查,运用协方差分析方法分析不同病情、不同病程、不同家庭经济状况的患病儿童对家庭主要照顾者的生存质量和家庭功能得分的影响。【结果】父母生存质量评分中以忧虑维度得分最低,为70分;家庭功能评分中以家庭日常活动得分最低,为66.67分。60%以上的被调查者均表示哮喘儿童对父母的工作和家庭日常生活都带来一定程度的影响。不同病情、病程患儿对家庭的影响差异无统计学意义(P>0.05),不同家庭经济状况患儿对家庭影响差异有统计学意义(P<0.05)。【结论】哮喘儿童对其主要照顾者和家庭都带来一定程度的影响。在对哮喘儿童进行治疗时,应重视对家长的心理帮助与支持,结合病情作好解释工作,减轻家长心理负担,树立信心配合治疗,使哮喘病情得到有效的控制,最终提高患儿及其父母的生存质量。
【Objective】 Explore the impact of asthma children on their primary caregivers and their families, providing a theoretical basis for clinical intervention and health education. 【Method】 The family impact module of children’s quality of life scale system (PedsQLTM) was used to investigate the main caregivers of children with asthma. The covariance analysis was used to analyze the prevalence of children with different conditions, different durations and different family economic status. Caregiver quality of life and family function score. 【Results】 The score of anxiety dimension in parental quality of life score was the lowest, which was 70 points. Family function score was the lowest in daily activities of family, which was 66.67 points. More than 60% of the respondents said asthma children have a certain degree of impact on their parents’ work and family daily life. There was no significant difference in the impact of family history in children with different illness and course of disease (P> 0.05). There was significant difference in the impact on family between children with different family financial status (P <0.05). 【Conclusion】 Children with asthma have a certain degree of impact on their primary caregivers and their families. In the treatment of asthmatic children, attention should be paid to the parents of psychological help and support, combined with the condition to explain the work to reduce the psychological burden on parents and establish confidence with the treatment, so that asthma conditions are effectively controlled and ultimately improve the children and their parents The quality of life.