无论个人还是社会,遇到困难大凡有两种选择:攻克或者放弃。放弃很简单,熟视无睹或一笑而过就可以了;而攻克有如一场攻坚战,需要群策群力,用智慧和勇气去完成。有一种困难涉及个人痛苦,也关乎社会公平。成骨不全症,神经肌肉疾病,法布瑞症……一串串令不少医生都陌生 Regardless of whether you are an individual or a society, there are two options for encountering difficulties: Conquering or giving up. Abandonment is very simple, and it can be done without turning a blind eye or making a smile. To conquer is like fighting a battle, you need to work together and use wisdom and courage to complete it. There is a kind of difficulty involving personal suffering and social fairness. Osteogenesis imperfecta, neuromuscular disorders, Fabry disease... A series of strings that make many doctors unfamiliar