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目的:了解脑性瘫痪(CP)患儿家长的社会支持状况与患儿遵医行为关系。方法:采用社会支持评定量表(SSRS)和自行设计调查问卷对62例CP患儿家长进行调查分析。结果:SSRS高分组与低分组相比,高支持组患儿家长完全按时复诊(70.97%)、完全遵照日常指导进行功能锻炼(51.61%),完全不按时复诊(0.00%)、完全不遵照日常指导进行功能锻炼(0.00%)与低支持组(分别为29.03%、6.45%、35.48%、45.16%)比较,差异均有统计学意义(P<0.001),而不完全按时复诊(29.03%),不完全遵照日常指导进行功能锻炼(48.39%)与低支持组(分别为35.48%、48.39%)比较差异无统计学意义(P>0.05)。结论:社会支持对CP患儿遵医行为有明显促进作用,通过加强CP患儿家长社会支持的一系列有效措施,可以提高遵医行为,医护人员在患儿家长社会心理护理中起到重要作用。
Objective: To understand the relationship between parents’ social support status and compliance behavior in children with cerebral palsy (CP). Methods: Social support rating scale (SSRS) and self-designed questionnaire survey of 62 cases of parents of children with CP were analyzed. Results: Compared with the low-score group, the parents of the high-support group had complete follow-up on time (70.97%), fully exercised according to routine instruction (51.61%), no referral at all (0.00%), The difference was statistically significant (P <0.001) when compared with the low support group (29.03%, 6.45%, 35.48%, 45.16% (48.39%) did not fully comply with the daily guidance and the low support group (35.48% and 48.39% respectively), the difference was not statistically significant (P> 0.05). Conclusion: Social support can significantly improve compliance of CP patients. A series of effective measures to strengthen the social support of parents with CP can improve compliance, and medical staff play an important role in social psychological nursing of children with CP .