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目的调查胃肠道恶性肿瘤患者临终阶段的自我感受负担及影响因素。方法采用整群随机抽样方法,于2012年3月-2013年4月在北京市、唐山市10家三级综合医院抽取280名生存期预计在6个月内的胃肠道恶性肿瘤患者,应用癌症患者自我感受负担量表(SPBS-CP)进行调查。结果该280名胃肠道恶性肿瘤患者临终阶段的自我感受负担总量表得分(53.92±18.37)分,处于中度自我感受负担程度,得分最高的维度是经济/家庭负担(69.17±8.21)分,最低的维度是治疗负担(38.91±5.92)分;照顾者为子女、家庭月收入、性别、文化程度、对疾病了解程度、确诊时间为影响胃肠道恶性肿瘤患者临终阶段自我感受负担的因素(P<0.05)。结论胃肠道恶性肿瘤患者临终阶段的自我感受负担水平较高,临床医护人员应探索针对性的护理干预措施,减轻患者的自我感受负担。
Objective To investigate the self-perceived burden and influencing factors of patients with gastrointestinal cancer at the dying stage. Methods A total of 280 patients with gastrointestinal cancer with a survival expectation of 6 months were collected from 10 tertiary hospitals in Beijing and Tangshan from March 2012 to April 2013 with a cluster randomized sampling method. Cancer Self-perceived Burden Scale (SPBS-CP) was investigated. Results The 280 patients with gastrointestinal cancer at the end of their lifetime had a self-perceived burden of 53.92 ± 18.37 points, with a moderate degree of self-perceived burden. The highest score was the economic / family burden (69.17 ± 8.21) , The lowest dimension is the treatment burden (38.91 ± 5.92); caregivers for children, family monthly income, gender, education level, degree of understanding of the disease, the diagnosis time is the impact of gastrointestinal cancer patients at the dying stage self-perceived burden of factors (P <0.05). Conclusion Patients with gastrointestinal cancer at the dying stage have a higher self-perceived burden of burden. Clinicians should explore specific nursing interventions to reduce the patient’s self-perceived burden.