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目的:了解门诊原发性干燥综合征(pSS)患者就医及延误诊断情况。方法:对我院门诊就诊的224例pSS患者进行随机现场调查。结果:224例pSS患者中,37.9%的pSS患者首次就诊于风湿免疫科,62.1%患者首次就诊于其他科室;患者平均延误就诊(4.3±1.2)a,16.1%曾被长期误诊为其他疾病,63.8%患者未被及时诊断。结论:pSS患者首次就诊在风湿免疫专科比率低,就诊及确诊均存在时间延误,迫切需要我们提高对该病的认识。
Objective: To understand the outpatient primary Sjogren’s syndrome (pSS) patients for medical treatment and delayed diagnosis. Methods: A total of 224 pSS patients from outpatient clinic in our hospital were randomized to investigate. Results: Of the 224 patients with pSS, 37.9% of patients with pSS first met the department of rheumatology and 62.1% of patients were admitted to other departments for the first time. The average delay in treatment was (4.3 ± 1.2) years and 16.1% were misdiagnosed as other diseases for a long time. 63.8% of the patients were not diagnosed promptly. Conclusion: The first visit of pSS patients with low rate of rheumatic immunology specialist, there are delays in the treatment and diagnosis, and urgently need us to raise awareness of the disease.