“世上最悲惨的事,是明知道有救命药却买不到,然后等死。”这是河南一位血友病患者母亲的深切感受。据悉从2007年起,被10万中国血友病患者称为“救命药”的凝血八因子,在全国范围内不断断货。两年过去了,这一状况没有任何缓解,一些血友病患者 “The most tragic thing in the world is knowing that there is a life-saving drug that you can’t buy, and then wait to die.” This is the deep feeling of a mother with hemophilia in Henan. It is reported that since 2007, 100,000 blood clotting factors of 100,000 Chinese people with hemophilia have been called “lifesaving drugs,” and they have been continuously discontinued nationwide. Two years have passed and this situation has not been alleviated. Some hemophilia patients