论文部分内容阅读
部份 TSC 家庭,最令人担心、挫折的事情,是不知道明天将会发生什么事。因为,TSC 是如此多变的,无法预测。作为TSC 患者的家属,你不清楚小孩将会如何发展,将会有哪些TSC症状降临在孩子身上。任何的小孩,很多目标都可以达到,也有很多的目标却无法达成。经过整个过程后,将会发现小孩的行为举止丰富了你的生命。付出给孩子特别的爱,以及处理这个疾病所产生的力量,都会对患者家属本身有整体的认知和提升。
Some TSC families, the most worrying and frustrating things, do not know what will happen tomorrow. Because, TSC is so variable, unpredictable. As a family member of TSC, you do not know how children will develop and what TSC symptoms will befall the child. Any child, many goals can be achieved, there are many goals but can not be reached. After the whole process, you will find that children’s behavior enriched your life. The special love given to the child and the power it takes to deal with the disease will have an overall awareness and promotion of the patient’s own family.