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目的:探讨脑性瘫痪对患儿及其家属生存质量的影响。方法:采用儿童生存质量测定量表体系(the pediatricquality of life inventory measurement models,PedsQL)4.0作为测定工具,分别对脑性瘫痪儿童及正常儿童进行生存质量测定;采用SF-36健康调查量表(the Mos 36-item short form health survey)作为测定工具,分别对脑性瘫痪儿童家属及正常儿童家属进行生存质量测定,比较脑性瘫痪儿童和正常儿童、脑性瘫痪儿童家属和正常儿童家属之间生存质量的差异性。结果:脑瘫儿童PedsQL 4.0测定中,脑瘫儿童在生理功能、情感功能、社交功能、学校总分及总分方面得分,均低于正常儿童(P<0.01)。在SF-36调查中,脑瘫儿童家属除外生理功能及生理职能两个项目外,其他项目包括躯体疼痛、总体健康、活力、社会功能、精神职能、精神健康以及总分方面得分,均低于正常儿童家属组(P<0.05)。结论:脑性瘫痪儿童及其家属的生存质量均较正常对照组低,因此,在实际的康复治疗中,应采用综合康复治疗手段,提高脑瘫儿童及其家属生存质量,同时社会要高度关注脑瘫患儿的家庭。
Objective: To explore the impact of cerebral palsy on the quality of life of children and their families. Methods: The quality of life of children with cerebral palsy and normal children were measured by using the pediatric quality of life inventory measurement models (PedsQL) 4.0 as the measuring tool. The SF-36 health questionnaire Mos 36-item short form health survey was used as the measurement tool to assess the quality of life of family members of children with cerebral palsy and normal children, and to compare the survival of children with cerebral palsy and normal children, family members of children with cerebral palsy and their relatives. Quality differences. Results: In the children with cerebral palsy, the PedsQL 4.0 test showed that children with cerebral palsy scored lower than normal children in physical function, emotional function, social function, school score and total score (P <0.01). In the SF-36 survey, except for two items of physiological and physiological functions, family members of children with cerebral palsy included physical pain, general health, vitality, social function, mental function, mental health, and overall score, all of which were lower than normal Children’s family group (P <0.05). Conclusion: The quality of life of children with cerebral palsy and their relatives is lower than that of normal control group. Therefore, in the actual rehabilitation, comprehensive rehabilitation should be used to improve the quality of life of children and their families with cerebral palsy. At the same time, society should pay close attention to cerebral palsy Family with children.