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J-RARE.NET: PATIENT REGISTRY (PR) AND PERSONAL HEALTH RECORD(PHR) SERVICE FOR RARE AND INTRACTABLE D
[会议论文] 作者:Kunihiro Nishimura,Yukiko Nishimura,J-RARE,Soichi Ogishima,
来源:The 2nd International Rare Diseases Research Consortium Conf 年份:2014
In this article,we would introduce our unique style of NANBYO (rare and intractable) diseases patient registry led by patient organizations and themselves,named"J-RARE.net".J-RARE.net is mixed service...
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