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J-RARE.NET: PATIENT REGISTRY (PR) AND PERSONAL HEALTH RECORD(PHR) SERVICE FOR RARE AND INTRACTABLE D
[会议论文] 作者：Kunihiro Nishimura,Yukiko Nishimura,J-RARE,Soichi Ogishima,
来源：The 2nd International Rare Diseases Research Consortium Conf 年份：2014
In this article,we would introduce our unique style of NANBYO (rare and intractable) diseases patient registry led by patient organizations and themselves,named"J-RARE.net".J-RARE.net is mixed service...
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