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目的探讨新生儿先天性心脏病(CHD)随访体系建立的必要性。方法 102例CHD患儿随机分为观察组和对照组各51例,观察组分别在出院后1、3、6、12个月进行规范化随访,对照组仅于出院后1、3、6、12个月进行电话随访。比较两组随访率、病情变化、生活质量评分。结果观察组和对照组1年内随访率分别为94.1%、80.4%,病死率分别为2.1%、9.8%,P均<0.05。两组随访前生活质量评分无统计学差异(P>0.05),随访6月后两组生活质量的评分均明显升高(P均<0.05),且观察组生活质量评分升高更明显(P<0.05)。结论建立CHD随访系统可降低患儿病死率,提高其生活质量。
Objective To explore the necessity of establishing a follow-up system for neonatal congenital heart disease (CHD). Methods A total of 102 children with CHD were randomly divided into observation group (51 cases) and control group (51 cases). The observation group were followed up at 1, 3, 6 and 12 months after discharge respectively. Month telephone follow-up. The follow-up rate, condition changes and quality of life scores of two groups were compared. Results The follow-up rates in the observation group and the control group were 94.1% and 80.4% respectively in one year. The case fatality rates were 2.1% and 9.8% respectively, all P <0.05. There was no significant difference in quality of life between the two groups before follow-up (P> 0.05). After 6 months follow-up, the scores of quality of life in the two groups were significantly increased (P <0.05), and the quality of life in the observation group increased more significantly <0.05). Conclusion The establishment of CHD follow-up system can reduce the mortality of children and improve their quality of life.