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[目的]开发适合中国特色的白血病患者生命质量量表的特异模块。[方法]采用议题小组和核心小组的程序化决策方式,通过定性访谈和定量调查分析相结合的方法对条目进行初步筛选、评价和修改形成初步量表。对2011年8月至10月经确诊后收住入院的24例白血病患者进行预调查,并抽取23名血液科相关医务工作者进行问卷调查和访谈,采用变异度法、因子分析法、相关系数分析法、病人重要性评分及医生重要性评分法进行分析。[结果]最终得出包含21个条目的特异模块,这些条目涵盖了白血病患者的出血症状、感染症状、特殊心理问题及其他特异症状等4个方面。[结论]白血病生命质量测定量表特异模块严格按程序执行,具有较好的代表性和内容效度。
[Objective] To develop a specific module of quality of life scale for leukemia patients with Chinese characteristics. [Methods] Programmed decision-making methods of task group and core group were adopted. Through the combination of qualitative interview and quantitative investigation and analysis, the entries were preliminarily screened, evaluated and modified to form a preliminary scale. A total of 24 leukemia patients admitted to hospital from August to October in 2011 were enrolled in this study. Twenty-three hematology-related medical workers were selected for questionnaire survey and interviews. Variance degree, factor analysis and correlation coefficient analysis Method, patient’s importance score and doctor’s importance score method. [Results] The final results showed that there were 21 specific modules, which covered four aspects of hemorrhagic symptoms, infectious symptoms, special psychological problems and other specific symptoms in leukemia patients. [Conclusion] The specific module of measuring scale of life quality of leukemia is implemented strictly according to the procedure, which has good representativeness and content validity.