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Breast cancer has become the most common type of cancer to women. Its incidence is on the rise yearly and has shifted toward younger women. It severely threatens women’s health. Worse still， treatments like surgery create impacts on muliebrity and bring physically and psychologically pains. Then， how do we help patients get an appropriate and in-time treatment to stabilize conditions？ More importantly， how do we help them get psychosocial supports？ A specialized social networking website for patients with breast cancer may be a solution.
Breast Cancer as the No.1 Killer to Women
乳腺癌是女性的第一大杀手
February 4th is the World Cancer Day. As the first incurable disease， cancer takes away seven million lives in the world every year， and this number is on the rise. According to the World Health Organization， its annual worldwide death toll will exceed 13.1 million by 2030.
According to UN statistics， lung cancer， stomach cancer， liver cancer and colorectal cancer have high incidence in males， while breast cancer， lung cancer， gastric cancer and colorectal cancer are more likely to happen in females. Due to difference in the physiological structure， the proportion of males’ and females’ breast cancer incidence is 1：100. Both in developed countries and developing countries， breast cancer remains the No. 1 killer for women. Especially in developing countries， due to the increase of life expectancy， rapid urbanization， worsening ecological environment and imperiled food safety， the incidence of breast cancer is rising rapidly.
Patients with breast cancer not only have to receive different therapies like drug therapy， radiation therapy， chemotherapy and surgery over the course of treatment， but also have to face the death or the fear of cancer recurrence. Patients and their families may face many operational details and problems that might arise over the course of treatment.
For example， almost all of breast cancer patients and their families are lost and panic in the first several months after the diagnosis. They will try any medical treatment. And many patients feel confused in the face of an endless stream of new drugs during the treatment. A lot of patients， due to economic pressures， are forced to give up the best treatment options. Patients’ rehabilitation at home without supports from doctors may also suffer from depression. Some women lose confidence after the mastectomy and feel difficult to integrate into the society. 2月4日是世界癌症日。作为现代人类第一绝症，癌症每年夺去全球700多万人的生命，而且这一数字还在快速上升。世界卫生组织预计，到2030年全世界每年癌症死亡人数将超过1310万。
联合国资料显示，男性患者中发病率最高的是肺癌、胃癌、肝癌和结直肠癌；而女性患者中发病率最高的是乳腺癌、肺癌、胃癌和结直肠癌。由于生理结构不同，男性与女性的乳腺癌发病比例是1：100。无论在发达国家，还是发展中国家，乳腺癌都是女性的头号杀手。尤其在发展中国家，由于预期寿命增加，城市化急速发展，生态环境及食品安全受到危害，乳腺癌发病率正在迅速上升。
然而，乳腺癌患者面对的不仅仅是药物治疗、放射治疗、化疗、手术等过程，也不仅仅是承担死亡威胁的恐惧和对癌症复发的担心。事实上，对于乳腺癌患者及其家人来说，治疗过程中还有更多细节和实际操作层面的问题需要解决。
例如，几乎所有的乳腺癌首发病人及其家属都会在确诊后的数月中陷入茫然无措，甚至病急乱投医。还有很大部分乳腺癌患者在治疗过程中，面对层出不穷的新药找不着方向。很大一部分患者迫于经济压力而放弃最佳治疗方案。一些已经进入康复期、在家休养的病人，由于缺乏专业医师的及时指导，甚至可能出现抑郁情绪。一些女性在乳房切割手术后丧失了自信，无法面对自己或是融入周遭的生活。
What Do Breast Cancer
Patients Need？
乳癌患者需要什么帮助？
All around the world， from India to the United Kingdom， from Japan to Canada， many groups provide help and setup websites for breast cancer patients. However， most of these sites have fixed contents， such as an application for funds or a Q & A section. These preset contents do not customize the needs of patients， nor provide multiple information feedbacks at once.
What do breast cancer patients really need？ The whole world is trying to lend a hand， but very few people put themselves in the shoes of patients to think about this question. "When a woman faces breast cancer， one of the most important resources she can have during this time is a network of real， personal connections with other women who are going through， or have been through， the same thing，" Mary Ray， co-founder of MyBCTeam， said.
MyBCTeam website was founded in San Francisco in October 2012. MyBCTeam stands for My Breast Cancer Team. It is a Face-book-like social platform. Like other social networking sites， users can publish information， update status， upload photos and videos and chat with other users. The only difference is that， it’s specifically designed for breast cancer patients.
Ray said “Women going through breast cancer will commonly say， "I want to be able to find other women just like me." If you're a 32-year-old woman who has been diagnosed with stage 2 breast cancer， and you are thinking about having kids after you go through chemo， you want to connect with other women who have gone through that journey. You may not want to connect with a 65-year-old post-menopausal woman. Many other sites and support groups don't take your specific characteristics into consideration. We built the search filters on MyBCTeam to reflect that.”
MyBCTeam provides a safe and welcoming environment where women can share their personal stories and daily ups and downs during and after treatment. Users can search for and connect with other women who have the same type and stage of breast cancer， are the same age， and even live in the same city. “Women can also share the providers they’ve found most useful – from oncologists to wig shops， treatment details and even specific tips like what drinks help with the short-term after-effects of chemotherapy on taste buds，” Ray said. Through exchanges with other patients， newly diagnosed patients can find therapies that suit them the best as soon as possible. Rehabilitees can help others. Most importantly， they can make friends with those who can understands them and find their own social circle here.
从印度到英国，从日本到加拿大，在世界各地都有许多团体为乳腺癌患者提供帮助，并成立相关的网站。然而，这些团体和网站为患者提供的帮助内容大多是有着既定系统的，例如申请基金资助，或者Q&A方式的答疑，却不能灵活适应每个患者的具体需要，或一次性提供多方面的信息。
乳腺癌患者作为一个特殊群体，究竟需要什么帮助？全世界都在关注并尝试帮助她们，却很少有人设身处地地思考这个问题。“当一个女人面临乳腺癌，她此时最需要的重要资源之一，就是能联系上其他正有同样经历或曾经有同样遭遇的女人。”MyBCTeam网站的创建者之一Mary Ray说。
MyBCTeam网站于2012年10月创立于美国三藩市，全称为My Breast Cancer Team，是一个类似Facebook的社交平台。和任何社交网站一样，用户可以随时发布信息，更新状态、照片、视频，与其他用户聊天，唯一的区别是，这里是一个专供乳腺癌患者交流的园地。
Ray说，“患有乳腺癌的女性常说的一句话是‘我想找到和我一样的女人’。如果你32岁，被确诊为乳癌二期，并且你在考虑化疗、病愈之后生个孩子，那么你一定想要找个有过这些经历的人聊聊。你可能就不想联系一个65岁已经绝经的女性来答疑，她可能给不了你需要的建议。其他支援团体或网站，并不像这样考虑每个人的特别需求。但我们网站的搜索引擎正是建立在这个思考之上。”
MyBCTeam为患者们提供了一个安全、和善的环境，在这里，她们可以分享个人经历和每次治疗后的情况起伏。使用者可以搜索并联系那些与她患同样种类或同一阶段癌症的女性。她也可以搜索与自己年龄相同，甚至同住一个城市的其他患者。“女性还可以分享任何她们觉得有用的信息——从美甲师到假发商店，从心理医师到瑜伽导师，治疗细节或者是一些特别的提示，例如哪些饮品可以通过味蕾帮助减轻化疗后的短期影响。”Ray说。
通过与其他病患的交流，新患者可以尽快找到适合自己的治疗方式，有经验的康复者可以为他人提供帮助，最重要的是，她们能在这里交到理解自己的朋友，找到适合自己的社交圈。
Take the Challenge Together
让我们一起嘲笑癌症吧
A wave of documentary photos about cancers was seen in the 1980’s and the 1990’s. For example， the inspiring album “Exploding into Life” was published in 1986， which was recorded Dorothy Lynch’s struggle against cancer and her death. The album not only brings the world of breast cancer patients to the public， but also shows the physical and psychological damages caused by the breast cancer to females through photos. A German female photographer once said： “When I undress in front of the camera， I instinctively put my hand over my chest， but at this time， there is nothing that my hands need to cover.”
Data show that about 60% of breast cancer patients show symptoms of depression and about 45% show symptoms of anxiety two years after surgeries. Therefore， more importantly for women with breast cancer need to learn how to deal with the mental trauma. On the MyBCTeam website， aside from sharing practical message， encouraging each other， those who have recovered motivate those who are just diagnosed； patients can have more confidence in their future.
Kate Matthews is a breast cancer rehabilitee， MyBCTeam user， and cartoonist. She released a lot of comic themed on breast cancer on MyBCTeam， using humors and mockeries to laugh at treatments and life. For example， in a physical examination， a doctor said： “Uh-oh， you become heavier.” The patient in the comic replied： “If doctors want me to lose weight， then why let me take a whole lot of drugs which add weight？” Each breast cancer patient will have this experience， and only they can understand the humor of these jokes. People ask， 'How can you possibly joke about this？' My answer is that the more severe the cancer， the more you need to joke about it. After my diagnosis， and before my surgery， I was in a bad place mentally， dealing with wigs， hair loss， and chemo... all the stuff that might happen. I had started journaling， but when I re-read what I wrote， it seemed so dark， bitter and toxic.”
Like many patients， Kate said she still live in fear of breast cancer recurrence. “but whenever I need to feel lifted away from the fear， horror and pain of breast cancer， humor is the first place I turn." Her optimistic attitude has received enthusiastic responses from the website， and now she has published two comic books about breast cancer.
上世纪八九十年代涌现了大量纪实摄影作品。例如 1986年出版的影集《Exploding into Life》，真实记录了作者之一的Dorothy Lynch患病并离世的过程，令人动容。这些影集不仅将乳腺癌患者的灰色世界呈现于世人眼前，更用摄影记录手法公开展现了乳腺癌带给女性的身体残损和心灵折磨。一位用镜头记录自己的德国女摄影师就曾说：“当我面对镜头脱衣服时，我本能地用手去遮挡前胸，但此时，已没有什么可供手遮挡了。”
一些资料显示：乳腺癌患者手术后两年约有60%患者出现抑郁症状，大约45%患者出现焦虑症状。因此，对罹患乳癌的女性来说，如何应对心灵上的创伤更为重要。在MyBCTeam的网站上，女人们除了分享实用讯息，更可以相互鼓舞，病愈者用自身成功经验去激励刚被确诊的新患者，让她们对自己的未来更加有信心。
Kate Matthews是一位乳腺癌康复者，也是MyBCTeam的用户，此外她的另一个身份是漫画家。她在MyBCTeam上发布了大量以乳腺癌为题材的幽默漫画，用轻松的话语和自嘲的角度来调侃治疗和生活。例如，在某次体检中医生说：“啊哦，你变重了。”画中的人物抱怨道：“如果医生们想让我瘦身，那何必非让我服用一大堆长胖的药啊！”每个乳腺癌患者都会有这样的经历，也只有她们才能够体味这些玩笑的幽默。
“人们问我：你怎么可以拿这事来开玩笑？我的回答是，你越是战胜了癌症，你越需要笑对它。”Kate说，“我被确诊后，在手术之前，我的精神状态是很差的。买假发，头发脱落，还有化疗……要应对所有可能发生的事。于是我开始写日记，但当我重读自己写得东西，只觉得黑暗和痛苦。”
和许多病人一样，Kate说自己至今还活在对乳癌复发的恐惧当中，“但当我想要驱散畏惧、恐怖和乳癌的痛苦时，幽默成了我的首选。”Kate的漫画和她乐观的态度在网站上得到了热烈的回应，现在她已经出版了两本关于乳腺癌的漫画集。
Sharing Life
共享生命，感受温暖
The site receives feedbacks from readers every day. The most common one is： "I have finally found a place where I don't feel so alone， and I can't tell you how nice it is to talk with other people who get it." And the user satisfaction has become the greatest force for website development.
Like Face-book， MyBCTeam also has the eDM. But the difference is that there is no “poke” but a “hug” function. Users can update their situations like sickness， treatments and feelings. Other users can give a hug if necessary. Thanks to the customized female-oriented design， more than three thousand members registered in the website in six months since it launched.
The site raises a few requirements to its members： “Accepting others. stay clear of any judgmental tone. Accept and respect differences. Sometimes you have already experienced something that another is currently going through. Understand and respect where they are or where they are coming from . Be helpful. Answer questions， give tips and help people out if needed. Don’t just sit there； get active！ Don’t post spam or sell stuff. Don’t shout， Please do not use horribly offensive language. Please be aware of the fact that this is a public forum， and as such if you post your phone number， everyone on the site will see it.” These rules make the site become an inclusive and harmonious community for breast cancer patients. Though men may also develop breast cancer， they may not expose his illness to the other gender. Therefore， considering the issue of privacy， MyBCTeam is only open to women. Mary Ray said： “At this time the site is dedicated only to women， though we hope with the success of this site and others， that we can eventually launch a site dedicated to men.”
网站每天都能收到读者的反馈，最常见的声音是：“我觉得终于找到了一个地方不再让我觉得孤单，我无法形容能和其他患者聊天是多么好的事。”而用户的满意度成了促进网站发展的最大动力。
像Facebook那样，MyBCTeam有活动页面，用户可以在这里发布信息，但不同的是，网站没有“戳一下”功能，而是设有“拥抱”按钮。面对其他用户发布的患病信息、治疗情况，或是内心感受、精神状态，如果你觉得她需要温暖，那么就给她一个拥抱吧。这类适应用户的特殊需要又充满女性体贴的设置，让网站在建成半年时间就有了超过三千名会员。
使用导读中，网站对社区成员提出了几点要求：“尊重并宽容地接纳他人，不要对别人心存偏见；有时候你已经历过某些人正在经历的过程，因此请理解他们；乐于助人，给出他人需要的建议和提示；和他人交流吧，别总在那儿坐着；拒绝垃圾和广告贴；我们不说脏话不吵架，不使用冒犯性语言；小心你的个人资料， 你若贴了自己的电话，别人可都看得到，三思后行。”这些规则让网站成为了一个包容、和谐的乳腺癌病友社区。
虽然男性也有可能患乳腺癌。但并非所有人都愿意让异性知晓自己患病，因此考虑到保护隐私的重要性，MyBCTeam只对女性开放。Mary Ray说：“在现阶段，这个网站只针对女性。不过随着这个网站及其他网站的成功，我们希望最终能开设一个男人专属的网站。”
乳腺癌已上升为女性肿瘤的首位，其发病率不仅有逐年上升的趋势，还出现低龄化现象，成为严重威胁女性健康的头号杀手。而在治疗过程中，因手术等治疗措施可能对女性性征发生影响，更为患者们带来身体和精神上的双重痛苦。如何帮助患者获得恰当的就医方式、途径，以期尽早控制病情；更重要的是，如何让患者们获得有效的精神支持？一个专供女性乳腺癌患者交流的社交网站或许是份不错的答卷。
Breast Cancer as the No.1 Killer to Women
乳腺癌是女性的第一大杀手
February 4th is the World Cancer Day. As the first incurable disease， cancer takes away seven million lives in the world every year， and this number is on the rise. According to the World Health Organization， its annual worldwide death toll will exceed 13.1 million by 2030.
According to UN statistics， lung cancer， stomach cancer， liver cancer and colorectal cancer have high incidence in males， while breast cancer， lung cancer， gastric cancer and colorectal cancer are more likely to happen in females. Due to difference in the physiological structure， the proportion of males’ and females’ breast cancer incidence is 1：100. Both in developed countries and developing countries， breast cancer remains the No. 1 killer for women. Especially in developing countries， due to the increase of life expectancy， rapid urbanization， worsening ecological environment and imperiled food safety， the incidence of breast cancer is rising rapidly.
Patients with breast cancer not only have to receive different therapies like drug therapy， radiation therapy， chemotherapy and surgery over the course of treatment， but also have to face the death or the fear of cancer recurrence. Patients and their families may face many operational details and problems that might arise over the course of treatment. For example， almost all of breast cancer patients and their families are lost and panic in the first several months after the diagnosis. They will try any medical treatment. And many patients feel confused in the face of an endless stream of new drugs during the treatment. A lot of patients， due to economic pressures， are forced to give up the best treatment options. Patients’ rehabilitation at home without supports from doctors may also suffer from depression. Some women lose confidence after the mastectomy and feel difficult to integrate into the society.
2月4日是世界癌症日。作为现代人类第一绝症，癌症每年夺去全球700多万人的生命，而且这一数字还在快速上升。世界卫生组织预计，到2030年全世界每年癌症死亡人数将超过1310万。
联合国资料显示，男性患者中发病率最高的是肺癌、胃癌、肝癌和结直肠癌；而女性患者中发病率最高的是乳腺癌、肺癌、胃癌和结直肠癌。由于生理结构不同，男性与女性的乳腺癌发病比例是1：100。无论在发达国家，还是发展中国家，乳腺癌都是女性的头号杀手。尤其在发展中国家，由于预期寿命增加，城市化急速发展，生态环境及食品安全受到危害，乳腺癌发病率正在迅速上升。
然而，乳腺癌患者面对的不仅仅是药物治疗、放射治疗、化疗、手术等过程，也不仅仅是承担死亡威胁的恐惧和对癌症复发的担心。事实上，对于乳腺癌患者及其家人来说，治疗过程中还有更多细节和实际操作层面的问题需要解决。
例如，几乎所有的乳腺癌首发病人及其家属都会在确诊后的数月中陷入茫然无措，甚至病急乱投医。还有很大部分乳腺癌患者在治疗过程中，面对层出不穷的新药找不着方向。很大一部分患者迫于经济压力而放弃最佳治疗方案。一些已经进入康复期、在家休养的病人，由于缺乏专业医师的及时指导，甚至可能出现抑郁情绪。一些女性在乳房切割手术后丧失了自信，无法面对自己或是融入周遭的生活。
What Do Breast Cancer
Patients Need？
乳癌患者需要什么帮助？
All around the world， from India to the United Kingdom， from Japan to Canada， many groups provide help and setup websites for breast cancer patients. However， most of these sites have fixed contents， such as an application for funds or a Q & A section. These preset contents do not customize the needs of patients， nor provide multiple information feedbacks at once.
What do breast cancer patients really need？ The whole world is trying to lend a hand， but very few people put themselves in the shoes of patients to think about this question. "When a woman faces breast cancer， one of the most important resources she can have during this time is a network of real， personal connections with other women who are going through， or have been through， the same thing，" Mary Ray， co-founder of MyBCTeam， said.
MyBCTeam website was founded in San Francisco in October 2012. MyBCTeam stands for My Breast Cancer Team. It is a Face-book-like social platform. Like other social networking sites， users can publish information， update status， upload photos and videos and chat with other users. The only difference is that， it’s specifically designed for breast cancer patients.
Ray said “Women going through breast cancer will commonly say， "I want to be able to find other women just like me." If you're a 32-year-old woman who has been diagnosed with stage 2 breast cancer， and you are thinking about having kids after you go through chemo， you want to connect with other women who have gone through that journey. You may not want to connect with a 65-year-old post-menopausal woman. Many other sites and support groups don't take your specific characteristics into consideration. We built the search filters on MyBCTeam to reflect that.” MyBCTeam provides a safe and welcoming environment where women can share their personal stories and daily ups and downs during and after treatment. Users can search for and connect with other women who have the same type and stage of breast cancer， are the same age， and even live in the same city. “Women can also share the providers they’ve found most useful – from oncologists to wig shops， treatment details and even specific tips like what drinks help with the short-term after-effects of chemotherapy on taste buds，” Ray said.
Through exchanges with other patients， newly diagnosed patients can find therapies that suit them the best as soon as possible. Rehabilitees can help others. Most importantly， they can make friends with those who can understands them and find their own social circle here.
从印度到英国，从日本到加拿大，在世界各地都有许多团体为乳腺癌患者提供帮助，并成立相关的网站。然而，这些团体和网站为患者提供的帮助内容大多是有着既定系统的，例如申请基金资助，或者Q&A方式的答疑，却不能灵活适应每个患者的具体需要，或一次性提供多方面的信息。
乳腺癌患者作为一个特殊群体，究竟需要什么帮助？全世界都在关注并尝试帮助她们，却很少有人设身处地地思考这个问题。“当一个女人面临乳腺癌，她此时最需要的重要资源之一，就是能联系上其他正有同样经历或曾经有同样遭遇的女人。”MyBCTeam网站的创建者之一Mary Ray说。
MyBCTeam网站于2012年10月创立于美国三藩市，全称为My Breast Cancer Team，是一个类似Facebook的社交平台。和任何社交网站一样，用户可以随时发布信息，更新状态、照片、视频，与其他用户聊天，唯一的区别是，这里是一个专供乳腺癌患者交流的园地。
Ray说，“患有乳腺癌的女性常说的一句话是‘我想找到和我一样的女人’。如果你32岁，被确诊为乳癌二期，并且你在考虑化疗、病愈之后生个孩子，那么你一定想要找个有过这些经历的人聊聊。你可能就不想联系一个65岁已经绝经的女性来答疑，她可能给不了你需要的建议。其他支援团体或网站，并不像这样考虑每个人的特别需求。但我们网站的搜索引擎正是建立在这个思考之上。”
MyBCTeam为患者们提供了一个安全、和善的环境，在这里，她们可以分享个人经历和每次治疗后的情况起伏。使用者可以搜索并联系那些与她患同样种类或同一阶段癌症的女性。她也可以搜索与自己年龄相同，甚至同住一个城市的其他患者。“女性还可以分享任何她们觉得有用的信息——从美甲师到假发商店，从心理医师到瑜伽导师，治疗细节或者是一些特别的提示，例如哪些饮品可以通过味蕾帮助减轻化疗后的短期影响。”Ray说。
通过与其他病患的交流，新患者可以尽快找到适合自己的治疗方式，有经验的康复者可以为他人提供帮助，最重要的是，她们能在这里交到理解自己的朋友，找到适合自己的社交圈。
Take the Challenge Together
让我们一起嘲笑癌症吧
A wave of documentary photos about cancers was seen in the 1980’s and the 1990’s. For example， the inspiring album “Exploding into Life” was published in 1986， which was recorded Dorothy Lynch’s struggle against cancer and her death. The album not only brings the world of breast cancer patients to the public， but also shows the physical and psychological damages caused by the breast cancer to females through photos. A German female photographer once said： “When I undress in front of the camera， I instinctively put my hand over my chest， but at this time， there is nothing that my hands need to cover.”
Data show that about 60% of breast cancer patients show symptoms of depression and about 45% show symptoms of anxiety two years after surgeries. Therefore， more importantly for women with breast cancer need to learn how to deal with the mental trauma. On the MyBCTeam website， aside from sharing practical message， encouraging each other， those who have recovered motivate those who are just diagnosed； patients can have more confidence in their future. Kate Matthews is a breast cancer rehabilitee， MyBCTeam user， and cartoonist. She released a lot of comic themed on breast cancer on MyBCTeam， using humors and mockeries to laugh at treatments and life. For example， in a physical examination， a doctor said： “Uh-oh， you become heavier.” The patient in the comic replied： “If doctors want me to lose weight， then why let me take a whole lot of drugs which add weight？” Each breast cancer patient will have this experience， and only they can understand the humor of these jokes.
People ask， 'How can you possibly joke about this？' My answer is that the more severe the cancer， the more you need to joke about it. After my diagnosis， and before my surgery， I was in a bad place mentally， dealing with wigs， hair loss， and chemo... all the stuff that might happen. I had started journaling， but when I re-read what I wrote， it seemed so dark， bitter and toxic.”
Like many patients， Kate said she still live in fear of breast cancer recurrence. “but whenever I need to feel lifted away from the fear， horror and pain of breast cancer， humor is the first place I turn." Her optimistic attitude has received enthusiastic responses from the website， and now she has published two comic books about breast cancer.
上世纪八九十年代涌现了大量纪实摄影作品。例如 1986年出版的影集《Exploding into Life》，真实记录了作者之一的Dorothy Lynch患病并离世的过程，令人动容。这些影集不仅将乳腺癌患者的灰色世界呈现于世人眼前，更用摄影记录手法公开展现了乳腺癌带给女性的身体残损和心灵折磨。一位用镜头记录自己的德国女摄影师就曾说：“当我面对镜头脱衣服时，我本能地用手去遮挡前胸，但此时，已没有什么可供手遮挡了。”
一些资料显示：乳腺癌患者手术后两年约有60%患者出现抑郁症状，大约45%患者出现焦虑症状。因此，对罹患乳癌的女性来说，如何应对心灵上的创伤更为重要。在MyBCTeam的网站上，女人们除了分享实用讯息，更可以相互鼓舞，病愈者用自身成功经验去激励刚被确诊的新患者，让她们对自己的未来更加有信心。
Kate Matthews是一位乳腺癌康复者，也是MyBCTeam的用户，此外她的另一个身份是漫画家。她在MyBCTeam上发布了大量以乳腺癌为题材的幽默漫画，用轻松的话语和自嘲的角度来调侃治疗和生活。例如，在某次体检中医生说：“啊哦，你变重了。”画中的人物抱怨道：“如果医生们想让我瘦身，那何必非让我服用一大堆长胖的药啊！”每个乳腺癌患者都会有这样的经历，也只有她们才能够体味这些玩笑的幽默。
“人们问我：你怎么可以拿这事来开玩笑？我的回答是，你越是战胜了癌症，你越需要笑对它。”Kate说，“我被确诊后，在手术之前，我的精神状态是很差的。买假发，头发脱落，还有化疗……要应对所有可能发生的事。于是我开始写日记，但当我重读自己写得东西，只觉得黑暗和痛苦。”
和许多病人一样，Kate说自己至今还活在对乳癌复发的恐惧当中，“但当我想要驱散畏惧、恐怖和乳癌的痛苦时，幽默成了我的首选。”Kate的漫画和她乐观的态度在网站上得到了热烈的回应，现在她已经出版了两本关于乳腺癌的漫画集。
Sharing Life
共享生命，感受温暖
The site receives feedbacks from readers every day. The most common one is： "I have finally found a place where I don't feel so alone， and I can't tell you how nice it is to talk with other people who get it." And the user satisfaction has become the greatest force for website development.
Like Face-book， MyBCTeam also has the eDM. But the difference is that there is no “poke” but a “hug” function. Users can update their situations like sickness， treatments and feelings. Other users can give a hug if necessary. Thanks to the customized female-oriented design， more than three thousand members registered in the website in six months since it launched. The site raises a few requirements to its members： “Accepting others. stay clear of any judgmental tone. Accept and respect differences. Sometimes you have already experienced something that another is currently going through. Understand and respect where they are or where they are coming from . Be helpful. Answer questions， give tips and help people out if needed. Don’t just sit there； get active！ Don’t post spam or sell stuff. Don’t shout， Please do not use horribly offensive language. Please be aware of the fact that this is a public forum， and as such if you post your phone number， everyone on the site will see it.” These rules make the site become an inclusive and harmonious community for breast cancer patients.
Though men may also develop breast cancer， they may not expose his illness to the other gender. Therefore， considering the issue of privacy， MyBCTeam is only open to women. Mary Ray said： “At this time the site is dedicated only to women， though we hope with the success of this site and others， that we can eventually launch a site dedicated to men.”
网站每天都能收到读者的反馈，最常见的声音是：“我觉得终于找到了一个地方不再让我觉得孤单，我无法形容能和其他患者聊天是多么好的事。”而用户的满意度成了促进网站发展的最大动力。
像Facebook那样，MyBCTeam有活动页面，用户可以在这里发布信息，但不同的是，网站没有“戳一下”功能，而是设有“拥抱”按钮。面对其他用户发布的患病信息、治疗情况，或是内心感受、精神状态，如果你觉得她需要温暖，那么就给她一个拥抱吧。这类适应用户的特殊需要又充满女性体贴的设置，让网站在建成半年时间就有了超过三千名会员。
使用导读中，网站对社区成员提出了几点要求：“尊重并宽容地接纳他人，不要对别人心存偏见；有时候你已经历过某些人正在经历的过程，因此请理解他们；乐于助人，给出他人需要的建议和提示；和他人交流吧，别总在那儿坐着；拒绝垃圾和广告贴；我们不说脏话不吵架，不使用冒犯性语言；小心你的个人资料， 你若贴了自己的电话，别人可都看得到，三思后行。”这些规则让网站成为了一个包容、和谐的乳腺癌病友社区。
虽然男性也有可能患乳腺癌。但并非所有人都愿意让异性知晓自己患病，因此考虑到保护隐私的重要性，MyBCTeam只对女性开放。Mary Ray说：“在现阶段，这个网站只针对女性。不过随着这个网站及其他网站的成功，我们希望最终能开设一个男人专属的网站。”
Breast Cancer as the No.1 Killer to Women
乳腺癌是女性的第一大杀手
February 4th is the World Cancer Day. As the first incurable disease， cancer takes away seven million lives in the world every year， and this number is on the rise. According to the World Health Organization， its annual worldwide death toll will exceed 13.1 million by 2030.
According to UN statistics， lung cancer， stomach cancer， liver cancer and colorectal cancer have high incidence in males， while breast cancer， lung cancer， gastric cancer and colorectal cancer are more likely to happen in females. Due to difference in the physiological structure， the proportion of males’ and females’ breast cancer incidence is 1：100. Both in developed countries and developing countries， breast cancer remains the No. 1 killer for women. Especially in developing countries， due to the increase of life expectancy， rapid urbanization， worsening ecological environment and imperiled food safety， the incidence of breast cancer is rising rapidly.
Patients with breast cancer not only have to receive different therapies like drug therapy， radiation therapy， chemotherapy and surgery over the course of treatment， but also have to face the death or the fear of cancer recurrence. Patients and their families may face many operational details and problems that might arise over the course of treatment.
For example， almost all of breast cancer patients and their families are lost and panic in the first several months after the diagnosis. They will try any medical treatment. And many patients feel confused in the face of an endless stream of new drugs during the treatment. A lot of patients， due to economic pressures， are forced to give up the best treatment options. Patients’ rehabilitation at home without supports from doctors may also suffer from depression. Some women lose confidence after the mastectomy and feel difficult to integrate into the society. 2月4日是世界癌症日。作为现代人类第一绝症，癌症每年夺去全球700多万人的生命，而且这一数字还在快速上升。世界卫生组织预计，到2030年全世界每年癌症死亡人数将超过1310万。
联合国资料显示，男性患者中发病率最高的是肺癌、胃癌、肝癌和结直肠癌；而女性患者中发病率最高的是乳腺癌、肺癌、胃癌和结直肠癌。由于生理结构不同，男性与女性的乳腺癌发病比例是1：100。无论在发达国家，还是发展中国家，乳腺癌都是女性的头号杀手。尤其在发展中国家，由于预期寿命增加，城市化急速发展，生态环境及食品安全受到危害，乳腺癌发病率正在迅速上升。
然而，乳腺癌患者面对的不仅仅是药物治疗、放射治疗、化疗、手术等过程，也不仅仅是承担死亡威胁的恐惧和对癌症复发的担心。事实上，对于乳腺癌患者及其家人来说，治疗过程中还有更多细节和实际操作层面的问题需要解决。
例如，几乎所有的乳腺癌首发病人及其家属都会在确诊后的数月中陷入茫然无措，甚至病急乱投医。还有很大部分乳腺癌患者在治疗过程中，面对层出不穷的新药找不着方向。很大一部分患者迫于经济压力而放弃最佳治疗方案。一些已经进入康复期、在家休养的病人，由于缺乏专业医师的及时指导，甚至可能出现抑郁情绪。一些女性在乳房切割手术后丧失了自信，无法面对自己或是融入周遭的生活。
What Do Breast Cancer
Patients Need？
乳癌患者需要什么帮助？
All around the world， from India to the United Kingdom， from Japan to Canada， many groups provide help and setup websites for breast cancer patients. However， most of these sites have fixed contents， such as an application for funds or a Q & A section. These preset contents do not customize the needs of patients， nor provide multiple information feedbacks at once.
What do breast cancer patients really need？ The whole world is trying to lend a hand， but very few people put themselves in the shoes of patients to think about this question. "When a woman faces breast cancer， one of the most important resources she can have during this time is a network of real， personal connections with other women who are going through， or have been through， the same thing，" Mary Ray， co-founder of MyBCTeam， said.
MyBCTeam website was founded in San Francisco in October 2012. MyBCTeam stands for My Breast Cancer Team. It is a Face-book-like social platform. Like other social networking sites， users can publish information， update status， upload photos and videos and chat with other users. The only difference is that， it’s specifically designed for breast cancer patients.
Ray said “Women going through breast cancer will commonly say， "I want to be able to find other women just like me." If you're a 32-year-old woman who has been diagnosed with stage 2 breast cancer， and you are thinking about having kids after you go through chemo， you want to connect with other women who have gone through that journey. You may not want to connect with a 65-year-old post-menopausal woman. Many other sites and support groups don't take your specific characteristics into consideration. We built the search filters on MyBCTeam to reflect that.”
MyBCTeam provides a safe and welcoming environment where women can share their personal stories and daily ups and downs during and after treatment. Users can search for and connect with other women who have the same type and stage of breast cancer， are the same age， and even live in the same city. “Women can also share the providers they’ve found most useful – from oncologists to wig shops， treatment details and even specific tips like what drinks help with the short-term after-effects of chemotherapy on taste buds，” Ray said. Through exchanges with other patients， newly diagnosed patients can find therapies that suit them the best as soon as possible. Rehabilitees can help others. Most importantly， they can make friends with those who can understands them and find their own social circle here.
从印度到英国，从日本到加拿大，在世界各地都有许多团体为乳腺癌患者提供帮助，并成立相关的网站。然而，这些团体和网站为患者提供的帮助内容大多是有着既定系统的，例如申请基金资助，或者Q&A方式的答疑，却不能灵活适应每个患者的具体需要，或一次性提供多方面的信息。
乳腺癌患者作为一个特殊群体，究竟需要什么帮助？全世界都在关注并尝试帮助她们，却很少有人设身处地地思考这个问题。“当一个女人面临乳腺癌，她此时最需要的重要资源之一，就是能联系上其他正有同样经历或曾经有同样遭遇的女人。”MyBCTeam网站的创建者之一Mary Ray说。
MyBCTeam网站于2012年10月创立于美国三藩市，全称为My Breast Cancer Team，是一个类似Facebook的社交平台。和任何社交网站一样，用户可以随时发布信息，更新状态、照片、视频，与其他用户聊天，唯一的区别是，这里是一个专供乳腺癌患者交流的园地。
Ray说，“患有乳腺癌的女性常说的一句话是‘我想找到和我一样的女人’。如果你32岁，被确诊为乳癌二期，并且你在考虑化疗、病愈之后生个孩子，那么你一定想要找个有过这些经历的人聊聊。你可能就不想联系一个65岁已经绝经的女性来答疑，她可能给不了你需要的建议。其他支援团体或网站，并不像这样考虑每个人的特别需求。但我们网站的搜索引擎正是建立在这个思考之上。”
MyBCTeam为患者们提供了一个安全、和善的环境，在这里，她们可以分享个人经历和每次治疗后的情况起伏。使用者可以搜索并联系那些与她患同样种类或同一阶段癌症的女性。她也可以搜索与自己年龄相同，甚至同住一个城市的其他患者。“女性还可以分享任何她们觉得有用的信息——从美甲师到假发商店，从心理医师到瑜伽导师，治疗细节或者是一些特别的提示，例如哪些饮品可以通过味蕾帮助减轻化疗后的短期影响。”Ray说。
通过与其他病患的交流，新患者可以尽快找到适合自己的治疗方式，有经验的康复者可以为他人提供帮助，最重要的是，她们能在这里交到理解自己的朋友，找到适合自己的社交圈。
Take the Challenge Together
让我们一起嘲笑癌症吧
A wave of documentary photos about cancers was seen in the 1980’s and the 1990’s. For example， the inspiring album “Exploding into Life” was published in 1986， which was recorded Dorothy Lynch’s struggle against cancer and her death. The album not only brings the world of breast cancer patients to the public， but also shows the physical and psychological damages caused by the breast cancer to females through photos. A German female photographer once said： “When I undress in front of the camera， I instinctively put my hand over my chest， but at this time， there is nothing that my hands need to cover.”
Data show that about 60% of breast cancer patients show symptoms of depression and about 45% show symptoms of anxiety two years after surgeries. Therefore， more importantly for women with breast cancer need to learn how to deal with the mental trauma. On the MyBCTeam website， aside from sharing practical message， encouraging each other， those who have recovered motivate those who are just diagnosed； patients can have more confidence in their future.
Kate Matthews is a breast cancer rehabilitee， MyBCTeam user， and cartoonist. She released a lot of comic themed on breast cancer on MyBCTeam， using humors and mockeries to laugh at treatments and life. For example， in a physical examination， a doctor said： “Uh-oh， you become heavier.” The patient in the comic replied： “If doctors want me to lose weight， then why let me take a whole lot of drugs which add weight？” Each breast cancer patient will have this experience， and only they can understand the humor of these jokes. People ask， 'How can you possibly joke about this？' My answer is that the more severe the cancer， the more you need to joke about it. After my diagnosis， and before my surgery， I was in a bad place mentally， dealing with wigs， hair loss， and chemo... all the stuff that might happen. I had started journaling， but when I re-read what I wrote， it seemed so dark， bitter and toxic.”
Like many patients， Kate said she still live in fear of breast cancer recurrence. “but whenever I need to feel lifted away from the fear， horror and pain of breast cancer， humor is the first place I turn." Her optimistic attitude has received enthusiastic responses from the website， and now she has published two comic books about breast cancer.
上世纪八九十年代涌现了大量纪实摄影作品。例如 1986年出版的影集《Exploding into Life》，真实记录了作者之一的Dorothy Lynch患病并离世的过程，令人动容。这些影集不仅将乳腺癌患者的灰色世界呈现于世人眼前，更用摄影记录手法公开展现了乳腺癌带给女性的身体残损和心灵折磨。一位用镜头记录自己的德国女摄影师就曾说：“当我面对镜头脱衣服时，我本能地用手去遮挡前胸，但此时，已没有什么可供手遮挡了。”
一些资料显示：乳腺癌患者手术后两年约有60%患者出现抑郁症状，大约45%患者出现焦虑症状。因此，对罹患乳癌的女性来说，如何应对心灵上的创伤更为重要。在MyBCTeam的网站上，女人们除了分享实用讯息，更可以相互鼓舞，病愈者用自身成功经验去激励刚被确诊的新患者，让她们对自己的未来更加有信心。
Kate Matthews是一位乳腺癌康复者，也是MyBCTeam的用户，此外她的另一个身份是漫画家。她在MyBCTeam上发布了大量以乳腺癌为题材的幽默漫画，用轻松的话语和自嘲的角度来调侃治疗和生活。例如，在某次体检中医生说：“啊哦，你变重了。”画中的人物抱怨道：“如果医生们想让我瘦身，那何必非让我服用一大堆长胖的药啊！”每个乳腺癌患者都会有这样的经历，也只有她们才能够体味这些玩笑的幽默。
“人们问我：你怎么可以拿这事来开玩笑？我的回答是，你越是战胜了癌症，你越需要笑对它。”Kate说，“我被确诊后，在手术之前，我的精神状态是很差的。买假发，头发脱落，还有化疗……要应对所有可能发生的事。于是我开始写日记，但当我重读自己写得东西，只觉得黑暗和痛苦。”
和许多病人一样，Kate说自己至今还活在对乳癌复发的恐惧当中，“但当我想要驱散畏惧、恐怖和乳癌的痛苦时，幽默成了我的首选。”Kate的漫画和她乐观的态度在网站上得到了热烈的回应，现在她已经出版了两本关于乳腺癌的漫画集。
Sharing Life
共享生命，感受温暖
The site receives feedbacks from readers every day. The most common one is： "I have finally found a place where I don't feel so alone， and I can't tell you how nice it is to talk with other people who get it." And the user satisfaction has become the greatest force for website development.
Like Face-book， MyBCTeam also has the eDM. But the difference is that there is no “poke” but a “hug” function. Users can update their situations like sickness， treatments and feelings. Other users can give a hug if necessary. Thanks to the customized female-oriented design， more than three thousand members registered in the website in six months since it launched.
The site raises a few requirements to its members： “Accepting others. stay clear of any judgmental tone. Accept and respect differences. Sometimes you have already experienced something that another is currently going through. Understand and respect where they are or where they are coming from . Be helpful. Answer questions， give tips and help people out if needed. Don’t just sit there； get active！ Don’t post spam or sell stuff. Don’t shout， Please do not use horribly offensive language. Please be aware of the fact that this is a public forum， and as such if you post your phone number， everyone on the site will see it.” These rules make the site become an inclusive and harmonious community for breast cancer patients. Though men may also develop breast cancer， they may not expose his illness to the other gender. Therefore， considering the issue of privacy， MyBCTeam is only open to women. Mary Ray said： “At this time the site is dedicated only to women， though we hope with the success of this site and others， that we can eventually launch a site dedicated to men.”
网站每天都能收到读者的反馈，最常见的声音是：“我觉得终于找到了一个地方不再让我觉得孤单，我无法形容能和其他患者聊天是多么好的事。”而用户的满意度成了促进网站发展的最大动力。
像Facebook那样，MyBCTeam有活动页面，用户可以在这里发布信息，但不同的是，网站没有“戳一下”功能，而是设有“拥抱”按钮。面对其他用户发布的患病信息、治疗情况，或是内心感受、精神状态，如果你觉得她需要温暖，那么就给她一个拥抱吧。这类适应用户的特殊需要又充满女性体贴的设置，让网站在建成半年时间就有了超过三千名会员。
使用导读中，网站对社区成员提出了几点要求：“尊重并宽容地接纳他人，不要对别人心存偏见；有时候你已经历过某些人正在经历的过程，因此请理解他们；乐于助人，给出他人需要的建议和提示；和他人交流吧，别总在那儿坐着；拒绝垃圾和广告贴；我们不说脏话不吵架，不使用冒犯性语言；小心你的个人资料， 你若贴了自己的电话，别人可都看得到，三思后行。”这些规则让网站成为了一个包容、和谐的乳腺癌病友社区。
虽然男性也有可能患乳腺癌。但并非所有人都愿意让异性知晓自己患病，因此考虑到保护隐私的重要性，MyBCTeam只对女性开放。Mary Ray说：“在现阶段，这个网站只针对女性。不过随着这个网站及其他网站的成功，我们希望最终能开设一个男人专属的网站。”
乳腺癌已上升为女性肿瘤的首位，其发病率不仅有逐年上升的趋势，还出现低龄化现象，成为严重威胁女性健康的头号杀手。而在治疗过程中，因手术等治疗措施可能对女性性征发生影响，更为患者们带来身体和精神上的双重痛苦。如何帮助患者获得恰当的就医方式、途径，以期尽早控制病情；更重要的是，如何让患者们获得有效的精神支持？一个专供女性乳腺癌患者交流的社交网站或许是份不错的答卷。
Breast Cancer as the No.1 Killer to Women
乳腺癌是女性的第一大杀手
February 4th is the World Cancer Day. As the first incurable disease， cancer takes away seven million lives in the world every year， and this number is on the rise. According to the World Health Organization， its annual worldwide death toll will exceed 13.1 million by 2030.
According to UN statistics， lung cancer， stomach cancer， liver cancer and colorectal cancer have high incidence in males， while breast cancer， lung cancer， gastric cancer and colorectal cancer are more likely to happen in females. Due to difference in the physiological structure， the proportion of males’ and females’ breast cancer incidence is 1：100. Both in developed countries and developing countries， breast cancer remains the No. 1 killer for women. Especially in developing countries， due to the increase of life expectancy， rapid urbanization， worsening ecological environment and imperiled food safety， the incidence of breast cancer is rising rapidly.
Patients with breast cancer not only have to receive different therapies like drug therapy， radiation therapy， chemotherapy and surgery over the course of treatment， but also have to face the death or the fear of cancer recurrence. Patients and their families may face many operational details and problems that might arise over the course of treatment. For example， almost all of breast cancer patients and their families are lost and panic in the first several months after the diagnosis. They will try any medical treatment. And many patients feel confused in the face of an endless stream of new drugs during the treatment. A lot of patients， due to economic pressures， are forced to give up the best treatment options. Patients’ rehabilitation at home without supports from doctors may also suffer from depression. Some women lose confidence after the mastectomy and feel difficult to integrate into the society.
2月4日是世界癌症日。作为现代人类第一绝症，癌症每年夺去全球700多万人的生命，而且这一数字还在快速上升。世界卫生组织预计，到2030年全世界每年癌症死亡人数将超过1310万。
联合国资料显示，男性患者中发病率最高的是肺癌、胃癌、肝癌和结直肠癌；而女性患者中发病率最高的是乳腺癌、肺癌、胃癌和结直肠癌。由于生理结构不同，男性与女性的乳腺癌发病比例是1：100。无论在发达国家，还是发展中国家，乳腺癌都是女性的头号杀手。尤其在发展中国家，由于预期寿命增加，城市化急速发展，生态环境及食品安全受到危害，乳腺癌发病率正在迅速上升。
然而，乳腺癌患者面对的不仅仅是药物治疗、放射治疗、化疗、手术等过程，也不仅仅是承担死亡威胁的恐惧和对癌症复发的担心。事实上，对于乳腺癌患者及其家人来说，治疗过程中还有更多细节和实际操作层面的问题需要解决。
例如，几乎所有的乳腺癌首发病人及其家属都会在确诊后的数月中陷入茫然无措，甚至病急乱投医。还有很大部分乳腺癌患者在治疗过程中，面对层出不穷的新药找不着方向。很大一部分患者迫于经济压力而放弃最佳治疗方案。一些已经进入康复期、在家休养的病人，由于缺乏专业医师的及时指导，甚至可能出现抑郁情绪。一些女性在乳房切割手术后丧失了自信，无法面对自己或是融入周遭的生活。
What Do Breast Cancer
Patients Need？
乳癌患者需要什么帮助？
All around the world， from India to the United Kingdom， from Japan to Canada， many groups provide help and setup websites for breast cancer patients. However， most of these sites have fixed contents， such as an application for funds or a Q & A section. These preset contents do not customize the needs of patients， nor provide multiple information feedbacks at once.
What do breast cancer patients really need？ The whole world is trying to lend a hand， but very few people put themselves in the shoes of patients to think about this question. "When a woman faces breast cancer， one of the most important resources she can have during this time is a network of real， personal connections with other women who are going through， or have been through， the same thing，" Mary Ray， co-founder of MyBCTeam， said.
MyBCTeam website was founded in San Francisco in October 2012. MyBCTeam stands for My Breast Cancer Team. It is a Face-book-like social platform. Like other social networking sites， users can publish information， update status， upload photos and videos and chat with other users. The only difference is that， it’s specifically designed for breast cancer patients.
Ray said “Women going through breast cancer will commonly say， "I want to be able to find other women just like me." If you're a 32-year-old woman who has been diagnosed with stage 2 breast cancer， and you are thinking about having kids after you go through chemo， you want to connect with other women who have gone through that journey. You may not want to connect with a 65-year-old post-menopausal woman. Many other sites and support groups don't take your specific characteristics into consideration. We built the search filters on MyBCTeam to reflect that.” MyBCTeam provides a safe and welcoming environment where women can share their personal stories and daily ups and downs during and after treatment. Users can search for and connect with other women who have the same type and stage of breast cancer， are the same age， and even live in the same city. “Women can also share the providers they’ve found most useful – from oncologists to wig shops， treatment details and even specific tips like what drinks help with the short-term after-effects of chemotherapy on taste buds，” Ray said.
Through exchanges with other patients， newly diagnosed patients can find therapies that suit them the best as soon as possible. Rehabilitees can help others. Most importantly， they can make friends with those who can understands them and find their own social circle here.
从印度到英国，从日本到加拿大，在世界各地都有许多团体为乳腺癌患者提供帮助，并成立相关的网站。然而，这些团体和网站为患者提供的帮助内容大多是有着既定系统的，例如申请基金资助，或者Q&A方式的答疑，却不能灵活适应每个患者的具体需要，或一次性提供多方面的信息。
乳腺癌患者作为一个特殊群体，究竟需要什么帮助？全世界都在关注并尝试帮助她们，却很少有人设身处地地思考这个问题。“当一个女人面临乳腺癌，她此时最需要的重要资源之一，就是能联系上其他正有同样经历或曾经有同样遭遇的女人。”MyBCTeam网站的创建者之一Mary Ray说。
MyBCTeam网站于2012年10月创立于美国三藩市，全称为My Breast Cancer Team，是一个类似Facebook的社交平台。和任何社交网站一样，用户可以随时发布信息，更新状态、照片、视频，与其他用户聊天，唯一的区别是，这里是一个专供乳腺癌患者交流的园地。
Ray说，“患有乳腺癌的女性常说的一句话是‘我想找到和我一样的女人’。如果你32岁，被确诊为乳癌二期，并且你在考虑化疗、病愈之后生个孩子，那么你一定想要找个有过这些经历的人聊聊。你可能就不想联系一个65岁已经绝经的女性来答疑，她可能给不了你需要的建议。其他支援团体或网站，并不像这样考虑每个人的特别需求。但我们网站的搜索引擎正是建立在这个思考之上。”
MyBCTeam为患者们提供了一个安全、和善的环境，在这里，她们可以分享个人经历和每次治疗后的情况起伏。使用者可以搜索并联系那些与她患同样种类或同一阶段癌症的女性。她也可以搜索与自己年龄相同，甚至同住一个城市的其他患者。“女性还可以分享任何她们觉得有用的信息——从美甲师到假发商店，从心理医师到瑜伽导师，治疗细节或者是一些特别的提示，例如哪些饮品可以通过味蕾帮助减轻化疗后的短期影响。”Ray说。
通过与其他病患的交流，新患者可以尽快找到适合自己的治疗方式，有经验的康复者可以为他人提供帮助，最重要的是，她们能在这里交到理解自己的朋友，找到适合自己的社交圈。
Take the Challenge Together
让我们一起嘲笑癌症吧
A wave of documentary photos about cancers was seen in the 1980’s and the 1990’s. For example， the inspiring album “Exploding into Life” was published in 1986， which was recorded Dorothy Lynch’s struggle against cancer and her death. The album not only brings the world of breast cancer patients to the public， but also shows the physical and psychological damages caused by the breast cancer to females through photos. A German female photographer once said： “When I undress in front of the camera， I instinctively put my hand over my chest， but at this time， there is nothing that my hands need to cover.”
Data show that about 60% of breast cancer patients show symptoms of depression and about 45% show symptoms of anxiety two years after surgeries. Therefore， more importantly for women with breast cancer need to learn how to deal with the mental trauma. On the MyBCTeam website， aside from sharing practical message， encouraging each other， those who have recovered motivate those who are just diagnosed； patients can have more confidence in their future. Kate Matthews is a breast cancer rehabilitee， MyBCTeam user， and cartoonist. She released a lot of comic themed on breast cancer on MyBCTeam， using humors and mockeries to laugh at treatments and life. For example， in a physical examination， a doctor said： “Uh-oh， you become heavier.” The patient in the comic replied： “If doctors want me to lose weight， then why let me take a whole lot of drugs which add weight？” Each breast cancer patient will have this experience， and only they can understand the humor of these jokes.
People ask， 'How can you possibly joke about this？' My answer is that the more severe the cancer， the more you need to joke about it. After my diagnosis， and before my surgery， I was in a bad place mentally， dealing with wigs， hair loss， and chemo... all the stuff that might happen. I had started journaling， but when I re-read what I wrote， it seemed so dark， bitter and toxic.”
Like many patients， Kate said she still live in fear of breast cancer recurrence. “but whenever I need to feel lifted away from the fear， horror and pain of breast cancer， humor is the first place I turn." Her optimistic attitude has received enthusiastic responses from the website， and now she has published two comic books about breast cancer.
上世纪八九十年代涌现了大量纪实摄影作品。例如 1986年出版的影集《Exploding into Life》，真实记录了作者之一的Dorothy Lynch患病并离世的过程，令人动容。这些影集不仅将乳腺癌患者的灰色世界呈现于世人眼前，更用摄影记录手法公开展现了乳腺癌带给女性的身体残损和心灵折磨。一位用镜头记录自己的德国女摄影师就曾说：“当我面对镜头脱衣服时，我本能地用手去遮挡前胸，但此时，已没有什么可供手遮挡了。”
一些资料显示：乳腺癌患者手术后两年约有60%患者出现抑郁症状，大约45%患者出现焦虑症状。因此，对罹患乳癌的女性来说，如何应对心灵上的创伤更为重要。在MyBCTeam的网站上，女人们除了分享实用讯息，更可以相互鼓舞，病愈者用自身成功经验去激励刚被确诊的新患者，让她们对自己的未来更加有信心。
Kate Matthews是一位乳腺癌康复者，也是MyBCTeam的用户，此外她的另一个身份是漫画家。她在MyBCTeam上发布了大量以乳腺癌为题材的幽默漫画，用轻松的话语和自嘲的角度来调侃治疗和生活。例如，在某次体检中医生说：“啊哦，你变重了。”画中的人物抱怨道：“如果医生们想让我瘦身，那何必非让我服用一大堆长胖的药啊！”每个乳腺癌患者都会有这样的经历，也只有她们才能够体味这些玩笑的幽默。
“人们问我：你怎么可以拿这事来开玩笑？我的回答是，你越是战胜了癌症，你越需要笑对它。”Kate说，“我被确诊后，在手术之前，我的精神状态是很差的。买假发，头发脱落，还有化疗……要应对所有可能发生的事。于是我开始写日记，但当我重读自己写得东西，只觉得黑暗和痛苦。”
和许多病人一样，Kate说自己至今还活在对乳癌复发的恐惧当中，“但当我想要驱散畏惧、恐怖和乳癌的痛苦时，幽默成了我的首选。”Kate的漫画和她乐观的态度在网站上得到了热烈的回应，现在她已经出版了两本关于乳腺癌的漫画集。
Sharing Life
共享生命，感受温暖
The site receives feedbacks from readers every day. The most common one is： "I have finally found a place where I don't feel so alone， and I can't tell you how nice it is to talk with other people who get it." And the user satisfaction has become the greatest force for website development.
Like Face-book， MyBCTeam also has the eDM. But the difference is that there is no “poke” but a “hug” function. Users can update their situations like sickness， treatments and feelings. Other users can give a hug if necessary. Thanks to the customized female-oriented design， more than three thousand members registered in the website in six months since it launched. The site raises a few requirements to its members： “Accepting others. stay clear of any judgmental tone. Accept and respect differences. Sometimes you have already experienced something that another is currently going through. Understand and respect where they are or where they are coming from . Be helpful. Answer questions， give tips and help people out if needed. Don’t just sit there； get active！ Don’t post spam or sell stuff. Don’t shout， Please do not use horribly offensive language. Please be aware of the fact that this is a public forum， and as such if you post your phone number， everyone on the site will see it.” These rules make the site become an inclusive and harmonious community for breast cancer patients.
Though men may also develop breast cancer， they may not expose his illness to the other gender. Therefore， considering the issue of privacy， MyBCTeam is only open to women. Mary Ray said： “At this time the site is dedicated only to women， though we hope with the success of this site and others， that we can eventually launch a site dedicated to men.”
网站每天都能收到读者的反馈，最常见的声音是：“我觉得终于找到了一个地方不再让我觉得孤单，我无法形容能和其他患者聊天是多么好的事。”而用户的满意度成了促进网站发展的最大动力。
像Facebook那样，MyBCTeam有活动页面，用户可以在这里发布信息，但不同的是，网站没有“戳一下”功能，而是设有“拥抱”按钮。面对其他用户发布的患病信息、治疗情况，或是内心感受、精神状态，如果你觉得她需要温暖，那么就给她一个拥抱吧。这类适应用户的特殊需要又充满女性体贴的设置，让网站在建成半年时间就有了超过三千名会员。
使用导读中，网站对社区成员提出了几点要求：“尊重并宽容地接纳他人，不要对别人心存偏见；有时候你已经历过某些人正在经历的过程，因此请理解他们；乐于助人，给出他人需要的建议和提示；和他人交流吧，别总在那儿坐着；拒绝垃圾和广告贴；我们不说脏话不吵架，不使用冒犯性语言；小心你的个人资料， 你若贴了自己的电话，别人可都看得到，三思后行。”这些规则让网站成为了一个包容、和谐的乳腺癌病友社区。
虽然男性也有可能患乳腺癌。但并非所有人都愿意让异性知晓自己患病，因此考虑到保护隐私的重要性，MyBCTeam只对女性开放。Mary Ray说：“在现阶段，这个网站只针对女性。不过随着这个网站及其他网站的成功，我们希望最终能开设一个男人专属的网站。”