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目的:探索建立儿童抗癫药学专科服务在住院部和门诊部的服务模式。方法:汇总分析实施这项药学服务模式过程中,收集发现的该群体药物治疗现状及患儿家属关心的主要问题。结果:上海交通大学医学院附属新华医院药学部自2016年6月开设抗癫门诊以来至2017年2月底,住院部完成50例药学服务,门诊总就诊量达240人次。通过门诊面对面交流发现,60%~70%癫患儿家属对患儿病情监测、服药方法及药物认识、癫疾病治疗要点认识、药品不良反应(ADRs)监测认识均不全面,其中,约5%的患儿家属对相关知识几乎完全不知,约25%的患儿家属对ADRs存在过度忧虑;急切换药或停药的家属比例高达26%。结论:相当一部分癫患儿家属在对抗癫药物治疗要点的认识上,以及自我用药安全监测上存在认识盲区。住院和门诊综合全面管理的专科药学服务模式对于更好帮助患儿家属理解药物治疗,打消对长期用药ADRs的过度顾虑,配合坚持长期药物治疗有积极的意义。
Objective: To explore the establishment of a service model of pediatric epilepsy medicine specialist services in inpatient and outpatient departments. Methods: To summarize and analyze the current status of drug therapy in this group and the main problems of family members concerned during the implementation of this pharmacy service model. Results: Department of Pharmacy, Xinhua Hospital Affiliated to Shanghai Jiao Tong University School of Medicine started 50 anti-epilepsy clinics since the end of February 2017. Inpatient department completed 50 cases of pharmacy services and outpatient visits totaled 240. Through outpatient face-to-face communication found that 60% to 70% of children with epilepsy in children with disease monitoring, medication and drug awareness, treatment of epilepsy disease awareness, adverse drug reactions (ADRs) monitoring awareness are not comprehensive, of which about 5% of the families of children almost completely unknown about the relevant knowledge, about 25% of the families of children over-anxiety over ADRs; anxiety switch or discontinuation of the family as high as 26%. Conclusion: A considerable part of the families of children with epilepsy in the treatment of epilepsy drug points of understanding, as well as self-medication safety monitoring blind spot exists. Inpatient and outpatient comprehensive and comprehensive management of specialist pharmacy service model for better help families understand the drug treatment of children, dispel long-term drug ADRs over-worry, with long-term adherence to medication has a positive meaning.