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目的:探讨成人癫痫患者疾病感知的特点及其对生活质量的影响。方法:采用横断面研究,对98例成人癫痫患者和同期就诊的75例糖尿病患者,使用疾病感知问卷中文修订版(Chinese illness perception questionnaire revised edition,CIPQ-R)进行评估,比较两组间疾病感知各因子的差异;采用癫痫患者生活质量量表(quality of life in epilepsy-31,QOLIE-31)对98例成人癫痫患者及55名健康人进行生活质量的评估,并应用相关和多元回归分析探讨疾病感知各因子对成人癫痫患者生活质量的影响。结果:(1)癫痫组CIPQ-R中的情绪陈述因子得分[(21.73±5.79)分]高于糖尿病组得分[(18.76±5.42)分],差异有统计学意义 (n P<0.01);癫痫组CIPQ-R中的疾病急/慢性、个人控制性、疾病相关性三个因子得分[(16.47±4.68)分、(20.91±4.03)分、(15.21±4.44)分]均低于糖尿病组得分[(19.16±4.75)分、(22.68±3.90)分、(16.56±3.73)分],差异有统计学意义 (n P<0.05);癫痫患者生活质量量表多个因子得分均低于健康对照组,差异有统计学意义 (n t=-2.264~-8.203,n P<0.01)。(2)相关分析显示:癫痫组CIPQ-R中的情绪陈述、严重后果因子与QOLIE-31的总分及其所属的各因子均呈显著负相关(n r=-0.202~ -0.527,n P<0.05);癫痫组CIPQ-R中的疾病同一性、疾病急/慢性、疾病周期性因子与QOLIE-31的总分呈负相关(n r=-0.272~ -0.342,n P<0.01);癫痫组CIPQ-R中的治疗控制性、疾病相关性因子与QOLIE-31的总分呈正相关(n r=0.259,n r=0.307,均n P<0.01)。(3)多元逐步线性回归显示,疾病感知之疾病同一性、疾病急/慢性、严重后果、疾病周期性、情绪陈述因子是成人癫痫患者生活质量的重要影响因素。n 结论:成人癫痫患者具有负性疾病感知,其中疾病感知的疾病同一性、疾病急/慢性、严重后果、疾病周期性、情绪陈述因子对成人癫痫患者生活质量具有显著影响。“,”Objective:To explore the characteristics of illness perceptions and its effect on quality of life in adult epileptics.Methods:A cross-sectional study was conducted to evaluate 98 adult patients with epilepsy and 75 diabetic patients hospitalized at the same period.The Chinese illness perception questionnaire revised edition(CIPQ-R) was used to evaluate the differences in illness perception factors between the two groups.The quality of life in epilepsy-31(QOLIE-31) was used to assess the quality of life of 98 adult epilepsy patients and 55 healthy people, and the correlation analysis and multivariate regression analysis were used to investigate the effect of illness perceptions on the quality of life of epileptic patients.Results:The emotional representations factor score of CIPQ-R in the epilepsy group(21.73±5.79) was higher than that in the diabetes group (18.76±5.42) (n P<0.01). The scores of timeline acute/chronic, personal control and illness coherence factors of CIPQ-R in the epilepsy group((16.47±4.68), (20.91±4.03), (15.21±4.44)) were lower than those in the diabetes group ((19.16±4.75), (22.68±3.90), (16.56±3.73)) (n P<0.05). The scores of multiple factors in the quality of life scale of patients with epilepsy were lower than those in healthy controls(n t=-2.264--8.203, n P<0.01). Correlation analysis showed that the emotional statement dimension and consequences factors in CIPQ-R were significantly negatively correlated with the total scores of QOLIE-31 and all the other factors it belongs to (n r=-0.202--0.527, n P<0.05); the identity, timeline acute/chronic, and timeline cyclical factors in CIPQ-R were negatively correlated with the total score of QOLIE-31 (n r=-0.272--0.342, n P<0.01); the treatment control and illness coherence factors in CIPQ-R were positively correlated with the total score of QOLIE-31 (n r=0.259, n r=0.307, n P<0.01). Multiple stepwise linear regression showed that the identity, timeline acute/chronic, consequences, timeline cyclical, and emotional representations factors were important factors influencing the quality of life of adults with epilepsy.n Conclusion:Adult epileptics have certain negative illness perceptions.Among them, identity, timeline acute/chronic, consequences, timeline cyclical and emotional representations factors have significant effects on the quality of life of adult epileptics.