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目的探析影响维吾尔族、汉族脑瘫患儿父母生活质量的相关因素。方法选取2014年4月~2015年4月在我院治疗的300例维吾尔族、汉族脑瘫患儿父母作为观察组,完成简明健康状况量表(SF-36)和脑瘫儿童父母生活质量影响因素调查表;于2015年4~7月在新疆各地州筛选的300例同地域正常儿童的父母作为对照组,完成SF-36量表。比较两组的SF-36评分,并分析观察组生活质量的影响因素。结果观察组的SF-36总评分为(71.26±4.99)分,明显低于对照组的(86.66±4.30)分,差异有统计学意义(P<0.05)。两民族之间脑瘫患儿的父母生活质量比较差异无统计学意义(P>0.05),患儿年龄、患儿病情严重程度(GMFCS分级)、子女个数及家庭月收入等因素均对脑瘫患儿父母的生活质量造成明显影响(P<0.05),除初中及以下与高中组差异无统计学意义(P>0.05)外,其他不同文化程度之间差异均有统计学意义(P<0.05)。结论患儿年龄、病情严重程度及其父母文化程度、子女个数及家庭月收入等均与维吾尔族、汉族脑瘫患儿父母生活质量具有相关性。
Objective To explore the related factors that affect the quality of life of parents with cerebral palsy in Uighur and Han nationality. Methods The parents of 300 children with cerebral palsy who were treated in our hospital from April 2014 to April 2015 in our hospital were selected as the observation group to investigate the influencing factors of parents’ quality of life on the Concise State of Health Inventory (SF-36) and children with cerebral palsy Table; From April to July 2015, 300 cases of parents of children with the same area in Xinjiang were screened as the control group to complete the SF-36 scale. The SF-36 scores of the two groups were compared and the influencing factors of the quality of life in the observation group were analyzed. Results The total score of SF-36 in the observation group was (71.26 ± 4.99) points, which was significantly lower than that in the control group (86.66 ± 4.30), the difference was statistically significant (P <0.05). There was no significant difference in the quality of life between parents of children with cerebral palsy (P> 0.05). The children’s age, the severity of illness (GMFCS grade), the number of children and monthly family income all had significant influence on cerebral palsy (P <0.05), except for junior high school and below and high school (P> 0.05), the differences among different education levels were statistically significant (P <0.05) . Conclusion The children’s age, severity of illness and their parents’ education level, the number of children and monthly family income are all related to the quality of life of parents of children with cerebral palsy in Uighur and Han nationality.