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【目的】分析孤独症患儿对其父母生存质量的影响,为有关机构展开工作提供参考依据。【方法】采用普适性生存质量测定量表(SF-36),对90例孤独症患儿父母及120例正常儿童的父母进行评定。【结果】1)孤独症组父母的生存质量总分及各领域评分均低于正常父母组(P<0.01);2)低功能孤独症组的父母生存质量评分明显低于高功能孤独症组(P<0.01);3)患儿家长的生存质量与患儿病情程度呈负相关,与智力水平呈正相关(P<0.01)。【结论】孤独症儿童对患儿父母生存质量有影响,低功能孤独症患儿则影响更大。
【Objective】 To analyze the influence of children with autism on the quality of life of their parents and provide references for the relevant agencies to carry out their work. 【Methods】 Ninety parents of children with autism and 120 normal children were assessed by Pervasive Quality of Life Scale (SF-36). 【Results】 1) The scores of parents ’quality of life and all fields in autism group were lower than those of normal parents (P <0.01); 2) The scores of parents’ quality of life in low-functional autism group were significantly lower than those of high-function autism group (P <0.01). 3) There was a negative correlation between the quality of life of the parents and the severity of illness of the children and positively correlated with the level of intelligence (P <0.01). 【Conclusion】 Children with autism have an impact on the quality of life of parents of children and children with low-functioning autism have a greater impact.