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作为一位母亲，当自己的孩子丧失了所有的希望时，她除了痛苦之外，还能怎么办呢？她要用什么样的语言才能唤醒孩子生存下去的勇气呢？
on’t you know?There will never be a cure!” my teenage daughter screamed from the backseat of the car.
I steadied my hands on the steering wheel while Jenna continued to rant1 and rave2.I tried to swallow the lump in my throat.Not finding a single word that could or would change the situation, I remained quiet and tears stung my eyes.God, you’ve got to help the scientists find a cure soon.My daughter is losing all hope.
“It’s just too hard!I’m tired of feeling sick!I’m tired of being tired!I’m sick and tired of being sick and tired!” Jenna sobbed from behind.“Mom, I just don’t think I can do it anymore...” she said as her voiced faded off into silence.
Jenna’s words cut deep, for I knew that without hope, her heart would break.Wishing that this conversation wasn’t occurring on a freeway, I fought traffic and slowly made my way to the off-ramp3, checking my rearview mirror only to see the penetrating4 look in Jenna’s eyes as she stared back at me.The unnerving silence was only interrupted by the sound of my turn signal.
It had been twelve years since Jenna truly “felt good”.And for twelve years she had lived courageously, fighting her chronic5 disease.I understood her feelings of defeat.I too was tired of daily watching my daughter tend to her catheter6 site, injecting7 herself with the proper medications, and experiencing the unpredictable side effects.I, too, wanted to join her in screaming, “I’m sick and tired of you being sick and tired!”
Watching her in such emotional and physical pain made me ache all over.If only I could take her illness upon me, I’d give her my health and bear her infirmity8.But I felt helpless not knowing how to console her.
I pulled into the first parking lot I could find.I parked the car, stepped out and then crawled into the backseat where Jenna lay motionless.I brushed her hair from her eyes hoping she’d open them and look into mine.She didn’t move.For five minutes or more, I just sat and held her, praying that God would renew her strength and will to live.
What does a mother say to her child who is living a nightmare, praying that she’d someday soon wake up and it would be over?What words could bring comfort when all hope is lost?
Not knowing the answers, I spoke from my heart, hoping to reach Jenna’s.“Jenna, I need you to look at me.I need to know that you really understand what I am about to say.”
She turned her head towards me and opened her eyes.Immediately she began to repeat her words of hopelessness.Gently, I placed my finger against her lips.
“Honey, today you’re tired and you’ve lost all hope.Today, you can rest in my arms and let me hope for you.You can be assured that my hope is endless and so is my love...”
“Mom,” Jenna interrupted me, smiling slightly.“If you can hope for me, I guess I can too.”She draped9 her arms around me.“Tell me again, Mom, that your hope is forever.”
“It’s forever, baby.My hope is forever.”
“难道你不知道吗？我的病是治不好的了！”我那十多岁的女儿在汽车后座上尖叫。
我一边听吉娜继续大喊大叫，一边用双手稳定地握住方向盘。我努力咽下哽在喉咙口的那个硬块。因为找不到一个能够或者将会改变现状的字眼，我只好沉默不语，任凭眼泪刺痛着眼睛。上帝呀，您一定要帮助科学家们快点发现一种治疗的方法。我女儿就快丧失所有的希望了。
“太难受了！我讨厌生病！我讨厌疲倦！我病了，我讨厌生病和疲倦！”吉娜在后座上啜泣着。“妈妈，我觉得自己再也支持不下去了……”她的声音越来越弱，终至于无。
吉娜的话深深地刺痛着我，因为我知道，没有了希望，她会心碎的。因为不希望在高速公路上说这件事，所以我全神贯注地在车水马龙中穿行，缓缓地下坡，查看后视镜，只见吉娜正从后视镜里回瞪着我，眼睛里流露出一种看透一切的眼神。笼罩着我们的那种紧张的沉默只有在汽车转弯时才会被语音提示打断。
吉娜感觉“良好”已是12年前的事情了。她勇敢地生活并与慢性疾病做斗争已经12年了。我理解她的失败感。每天看着女儿注意自己的导液管、自己给自己注射药物、体验不可知的药物副作用，我自己也感到厌倦了。我也想和她一起尖叫：“我病了，我讨厌生病和疲倦！”
看着她精神和身体都这么痛苦，我感到全身都痛。如果我能代她生病，我愿意用自己的健康换取她的健康，并承受她的虚弱。但我感到很无助，不知道该如何安慰她。
我把车开到我能够找到的第一个停车位上。我停好车，走出去，爬进汽车后座。吉娜正一动不动地躺在那里。我将遮挡她视线的头发拂去，希望她会睁开眼睛看着我。但她没有动。在之后的五分钟或许更久一点的时间里，我只是坐在那里，搂着她，祈祷上帝会向她的身体里注入新的勇气和生存下去的意志。
一位祈祷孩子很快就会醒来、一切都会过去的母亲能对正在做恶梦的孩子说些什么呢？当所有希望都丧失了以后，还有什么样的语言能够带来安慰呢？
我不知道答案，只能真诚地说“吉娜，我需要你看着我。我需要知道你真的能听懂我将要对你说的话”，希望能以此触动她的心。
她把头转向我，睁开了眼睛。她立即又开始向我重复那些绝望的话。我轻轻地将手指放在她的嘴唇上。
“亲爱的，你今天太累了，你已经丧失了所有的希望。今天，你可以躺在我的怀里休息，让我为你希望。你可以放心，我的希望是永无止境的，我的爱也是……”
“妈妈，”吉娜打断我，脆弱地笑了笑。“如果你能为我希望，我想我也能。”她伸出胳膊搂着我。“再对我说一次，妈妈，你的希望永远都在。”
“它永远都在，宝贝。我的希望永远都在。”
阑珊 摘译自 Moved Moment in Life
on’t you know?There will never be a cure!” my teenage daughter screamed from the backseat of the car.
I steadied my hands on the steering wheel while Jenna continued to rant1 and rave2.I tried to swallow the lump in my throat.Not finding a single word that could or would change the situation, I remained quiet and tears stung my eyes.God, you’ve got to help the scientists find a cure soon.My daughter is losing all hope.
“It’s just too hard!I’m tired of feeling sick!I’m tired of being tired!I’m sick and tired of being sick and tired!” Jenna sobbed from behind.“Mom, I just don’t think I can do it anymore...” she said as her voiced faded off into silence.
Jenna’s words cut deep, for I knew that without hope, her heart would break.Wishing that this conversation wasn’t occurring on a freeway, I fought traffic and slowly made my way to the off-ramp3, checking my rearview mirror only to see the penetrating4 look in Jenna’s eyes as she stared back at me.The unnerving silence was only interrupted by the sound of my turn signal.
It had been twelve years since Jenna truly “felt good”.And for twelve years she had lived courageously, fighting her chronic5 disease.I understood her feelings of defeat.I too was tired of daily watching my daughter tend to her catheter6 site, injecting7 herself with the proper medications, and experiencing the unpredictable side effects.I, too, wanted to join her in screaming, “I’m sick and tired of you being sick and tired!”
Watching her in such emotional and physical pain made me ache all over.If only I could take her illness upon me, I’d give her my health and bear her infirmity8.But I felt helpless not knowing how to console her.
I pulled into the first parking lot I could find.I parked the car, stepped out and then crawled into the backseat where Jenna lay motionless.I brushed her hair from her eyes hoping she’d open them and look into mine.She didn’t move.For five minutes or more, I just sat and held her, praying that God would renew her strength and will to live.
What does a mother say to her child who is living a nightmare, praying that she’d someday soon wake up and it would be over?What words could bring comfort when all hope is lost?
Not knowing the answers, I spoke from my heart, hoping to reach Jenna’s.“Jenna, I need you to look at me.I need to know that you really understand what I am about to say.”
She turned her head towards me and opened her eyes.Immediately she began to repeat her words of hopelessness.Gently, I placed my finger against her lips.
“Honey, today you’re tired and you’ve lost all hope.Today, you can rest in my arms and let me hope for you.You can be assured that my hope is endless and so is my love...”
“Mom,” Jenna interrupted me, smiling slightly.“If you can hope for me, I guess I can too.”She draped9 her arms around me.“Tell me again, Mom, that your hope is forever.”
“It’s forever, baby.My hope is forever.”
“难道你不知道吗？我的病是治不好的了！”我那十多岁的女儿在汽车后座上尖叫。
我一边听吉娜继续大喊大叫，一边用双手稳定地握住方向盘。我努力咽下哽在喉咙口的那个硬块。因为找不到一个能够或者将会改变现状的字眼，我只好沉默不语，任凭眼泪刺痛着眼睛。上帝呀，您一定要帮助科学家们快点发现一种治疗的方法。我女儿就快丧失所有的希望了。
“太难受了！我讨厌生病！我讨厌疲倦！我病了，我讨厌生病和疲倦！”吉娜在后座上啜泣着。“妈妈，我觉得自己再也支持不下去了……”她的声音越来越弱，终至于无。
吉娜的话深深地刺痛着我，因为我知道，没有了希望，她会心碎的。因为不希望在高速公路上说这件事，所以我全神贯注地在车水马龙中穿行，缓缓地下坡，查看后视镜，只见吉娜正从后视镜里回瞪着我，眼睛里流露出一种看透一切的眼神。笼罩着我们的那种紧张的沉默只有在汽车转弯时才会被语音提示打断。
吉娜感觉“良好”已是12年前的事情了。她勇敢地生活并与慢性疾病做斗争已经12年了。我理解她的失败感。每天看着女儿注意自己的导液管、自己给自己注射药物、体验不可知的药物副作用，我自己也感到厌倦了。我也想和她一起尖叫：“我病了，我讨厌生病和疲倦！”
看着她精神和身体都这么痛苦，我感到全身都痛。如果我能代她生病，我愿意用自己的健康换取她的健康，并承受她的虚弱。但我感到很无助，不知道该如何安慰她。
我把车开到我能够找到的第一个停车位上。我停好车，走出去，爬进汽车后座。吉娜正一动不动地躺在那里。我将遮挡她视线的头发拂去，希望她会睁开眼睛看着我。但她没有动。在之后的五分钟或许更久一点的时间里，我只是坐在那里，搂着她，祈祷上帝会向她的身体里注入新的勇气和生存下去的意志。
一位祈祷孩子很快就会醒来、一切都会过去的母亲能对正在做恶梦的孩子说些什么呢？当所有希望都丧失了以后，还有什么样的语言能够带来安慰呢？
我不知道答案，只能真诚地说“吉娜，我需要你看着我。我需要知道你真的能听懂我将要对你说的话”，希望能以此触动她的心。
她把头转向我，睁开了眼睛。她立即又开始向我重复那些绝望的话。我轻轻地将手指放在她的嘴唇上。
“亲爱的，你今天太累了，你已经丧失了所有的希望。今天，你可以躺在我的怀里休息，让我为你希望。你可以放心，我的希望是永无止境的，我的爱也是……”
“妈妈，”吉娜打断我，脆弱地笑了笑。“如果你能为我希望，我想我也能。”她伸出胳膊搂着我。“再对我说一次，妈妈，你的希望永远都在。”
“它永远都在，宝贝。我的希望永远都在。”
阑珊 摘译自 Moved Moment in Life