Baby girl’s rare skin condition makes hugging impossible

来源 :第二课堂(高中版) | 被引量 : 0次 | 上传用户:sunxunjun2008
下载到本地 , 更方便阅读
声明 : 本文档内容版权归属内容提供方 , 如果您对本文有版权争议 , 可与客服联系进行内容授权或下架
论文部分内容阅读
  导读:相互拥抱能让人感觉到安全与温暖,可是对于患有大疱性表皮松解症的人来说,他们的皮肤薄如蝉翼,日常的轻微摩擦都会使他们受伤,更不用说相互拥抱了。
  Hugs make us feel nice, happy, and safe. But did you know that it is possible for hugs to be so painful, in fact, that some people can never ever be hugged?
  Two-month-old Kiira Kinkle was born with an extremely rare disease called recessive dystrophic epidemolysis bullosa(大疱性表皮松解症). If anyone hugs her, or even if a clothing wipes against her skin, her skin develops painful blisters.
  “ I can’t hold her hand because it’s continually bandaged. There is no skin-to-skin touch,” said her mother, Kirsti Kinkle.
  Every day Kirsti and her husband, who live in Lincoln, California, each have to spend at least two hours a day putting pieces of light cloth around Kiira’s fingers and toes before wrapping them in bandages. She has to wear very soft clothes and has to be wrapped in a light cloth before anyone can pick her up.
  To make things even worse, there is no treatment for this disease other than wrapping the body in bandages. “Everything right now is just a treatment to improve conditions but not get rid of it,” said Kirsti.
  Kiira’s older sisters want to be able to play with her, but, at least right now, they can’t do anything more than a game of “hide and seek”with her.
  If you had Kiira’s condition, what sort of things would you be unable to do? Tell us what you think are some good ways for Kiira to have fun when she is older that won’t cause her to get blisters.
  Vocabulary
  extremely adv. 極其地
  wipe v.
其他文献
导读:假如生活欺骗了你,不要悲伤,不要心急。本文的作者就以亲身经历,告诉大家如何走出人生的低谷。  “However long the night, the dawn will break.” —African Proverb  Were there times in your life where it felt anything that could go wrong went wrong?
Most dogs hate being dropped off at daycare — Not Riley! In fact, the five-year-old golden retriever, who lives in Belmont, North Carolina, loves being at the Happy Dog Cafe
Dad said, “It’s Olympics time,”  And Mum said, “It’s screen time.”  They slouch on the couch;  Between them, I crouch.  Our eyes glued to the screen,  Wowed by the brilliant scene,  Dazzled by the pan
任新年,快乐发明体系创始人、上海新纪元教育集团瑞安总校校长助理、温州大学大学生创业导师、中国发明协会会员、2013年浙江省十大教育影响力人物。主编或参编的图书有《创造发明我能行》《智慧之光》《快乐魔方》《快乐发明——20小时让你成为小小发明家》。快乐发明课程被评为浙江省义务教育精品课程,指导学生获得300多项国家发明专利和7000多项国家实用新型专利。因创新教育成果突出,获得“中国百佳创新型名师”
导读:无论贫穷还是富有,生活都是上天赐予我们的珍贵礼物。  Today before you think of saying an unkind word,  Think of someone who can’t speak.  Before you complain about the taste of your food,  Think of someone who has nothing t
1 Blue Democrats (民主党)  首先,来看看“blue”和政治的关系。每当美国有选举的时候,我们都会听到“红州”和“蓝州”。红色代表共和党或保守党的州,而蓝色代表民主或更自由的州。1976年,NBC电视台首次用颜色来标记这些党派,投票支持共和党的人用蓝色代表,投票支持民主党的人则用红色。  所以在接下来的选举中,很多电视台都沿用了红蓝颜色。但这并没有获得官方的正式批准,所以公众开始
Have you ever been the recipient of put-downs or unfriendly language?If you have, your confidence may have suffered a great nosedive.I once joined a summer music camp for studying the piano. One day,
临近黄昏的世界“啪”的一声突然安静下来。  前台因为抽烟而前一刻还和老板争论不休的男人叼着烟,脸保持着扭曲的表情,手在半空中僵着,显现出一个可笑的弧度。对面和男朋友打电话的女人,夹着电话,歪着头,一只手端着杯子,嘴里却咯咯地笑个不停,没有半点要喝的意思,此刻嘴还是张着,却没有了动作。还有那些嘴里含糊不清地喊叫着,敲打着键盘与敌人厮杀的少年,手定在键盘上,仿佛是还未回过神来。  程聿手握着鼠标的姿势
导读:所谓充实,更关乎的是你努力的过程。不要被成败所牵绊,也不要纠结于过去或未来,着眼于当前,因为现在的每一刻都可以比任何时候过得更充实。  A rich and beautiful life requires nothing more than what you already have. Richness depends only on your decision to accept and
我小的时候,是在阿拉巴马州的祖父家度过的,我在默尔比小城的一所教堂小学里读书。  我读书非常用功,但很奇怪,学习成绩总是很差。可同学们读书似乎很轻松,有些人甚至很不用功,但每次考试他们都能得到“A”,而我却只能得到那个令人沮丧的“C”。后来有一次,我非常意外地得到了一个“B”。这让我的老师非常惊喜,她当着全班同学的面表扬我说:“人的智力确实是有差异的,同样的事情,有些人很轻易就能做好,而有些人再怎