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血友病是一种遗传性出血性疾病,由于体内缺乏凝血因子八或九,导致血液凝固异常,给患者家庭和社会都造成沉重的负担。血友病综合关怀是对血友病患者及家庭进行全面的治疗、护理及生活指导,从而全面实现血友病管理的规范化、专业化、科学化,减轻血友病的危害。通过对山东省血友病综合关怀工作模式的总结,探讨一种新的、适合国情的综合关怀工作模式,以提高血友病患者的生存质量,减轻家庭和社会负担。
Hemophilia is a hereditary hemorrhagic disease. Due to the lack of coagulation factor VIII or IX in the body, abnormal blood coagulation results in a heavy burden on the families and the community. Comprehensive care for hemophilia is a comprehensive treatment, care and living guide for people with hemophilia and their families, so as to fully standardize, professionalize and scientifically manage hemophilia and reduce the risk of hemophilia. Through the summary of work mode of comprehensive care for hemophilia in Shandong Province, this paper discusses a new work mode of comprehensive care suited to national conditions to improve the quality of life of hemophiliacs and reduce the burden on families and society.