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目的了解出生缺陷患儿对陪护人心理健康的影响。方法采用生活质量综合评定量表(generic quality of life inventory-74,GQOLI-74)作为测量工具,对79名出生缺陷患儿的174名陪护人及87名正常儿童的181名陪护人的生活质量进行评价,同时结合症状自评量表(symptom check list-90,SCL-90),对其心理健康状况进行综合研究。结果出生缺陷患儿陪护人在GQOLI-74量表的4个维度的评分均低于一般人群,差异均有统计学意义(均有P<0.05);在SCL-90量表的所有因子的得分均高于一般人群,且在躯体化、人际关系、抑郁、焦虑和精神病性5个因子的差异均有统计学意义(均有P<0.05);患儿祖(外祖)父母在SCL-90量表各因子得分普遍高于患儿父母,且在躯体化、人际关系、精神病性3个因子上的得分差异均有统计学意义(均有P<0.05)。结论出生缺陷患儿对其陪护人心理健康的影响是一个不容忽视的问题,应该引起足够的重视。
Objective To understand the impact of children with birth defects on the mental health of caregivers. Methods A total quality of life inventory-74 (GQOLI-74) was used as a measurement tool to measure the quality of life of 174 children with deformity and 174 children with dementia. , And combined with the symptom check list-90 (SCL-90) to make a comprehensive study of their mental health status. Results The scores of the four dimensions of GQOLI-74 in children with birth defects were significantly lower than those in the general population (all P <0.05); scores of all the factors in SCL-90 Were higher than the general population, and there were significant differences among the five factors of somatization, interpersonal relationship, depression, anxiety and psychosis (all P <0.05) The score of each factor in the scale was generally higher than that of the parents of the children, and there were significant differences among the three factors in somatization, interpersonal relationship and psychosis (P <0.05). Conclusion The impact of children with birth defects on the mental health of their bearers is a problem that should not be neglected and should be given enough attention.