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目的了解北京市西城区唐氏征筛查高危人群对于唐氏征高危的知晓率、羊水穿刺率、产前咨询满意度等,找出薄弱环节,为健康教育提供依据。方法自行设计问卷,对2008年10月1日～2009年9月30日间北京市西城区产科医院随机抽取466名唐氏征筛查高危患者进行问卷调查。结果①接受调查的466例唐氏征筛查高危的孕产妇中,包括21-三体高危362例(78%),18-三体高危29例(6%),神经管畸形高危75例(16%)。②466例唐氏征筛查高危孕产妇中,444例到产科门诊进行产前咨询,产前咨询率达95%;275例进一步行产前诊断羊水穿刺,羊水穿刺率59%。③未做产前诊断羊水穿刺的191例中,81例担心羊水穿刺有风险,占42%;46例觉得没有必要做,占24%;64例通过超声检查、复做唐氏征筛查等其他途径,自行放弃羊水穿刺,占34%。④444例行产前咨询的高危孕产妇中,405例表示对咨询结果满意,满意度91%;37例感觉一般,占8%;2例觉得不满意,不到1%。结论①北京西城区医院唐氏征筛查高危的孕产妇大部分能进一步行产前咨询,并对咨询满意度较高。②唐氏征筛查高危孕产妇,进一步行羊水穿刺染色体检查的比率不高,宣教工作有待进一步加强。
Objective To understand the awareness rate of high risk of Down’s syndrome in Xicheng District of Beijing, to find out the awareness of the high risk of Down’s syndrome, the amniotic fluid puncture rate and the prenatal counseling satisfaction, so as to find out the weak links and provide the basis for health education. Methods The questionnaire was designed by ourselves. From October 1, 2008 to September 30, 2009, 466 patients with high risk of Down’s Syndrome screening were selected randomly from the obstetric hospital of Xicheng District of Beijing for questionnaire survey. Results Among the 466 pregnant women surveyed with Down’s syndrome, there were 362 (78%) high risk of trisomy 21, 29 high risk of trisomy 18 (75%), 75 high risk of neural tube defects 16%). Among 466 high-risk pregnant women who underwent Down’s Syndrome screening, 444 cases went to the obstetric clinic for prenatal counseling, and the prenatal counseling rate was 95%. 275 cases underwent further prenatal diagnosis of amniocentesis and amniocentesis rate was 59%. Of the 191 cases without prenatal diagnosis of amniocentesis, 81 cases were at risk of amniocentesis, accounting for 42%; 46 cases did not find it necessary to do, accounting for 24%; 64 cases were retrospectively surveyed by Down’s syndrome Other ways to give up amniocentesis, accounting for 34%. ④444 routine prenatal counseling among high-risk pregnant women, 405 cases that the satisfaction of the consultation results were 91%; 37 cases of sensory, accounting for 8%; 2 were not satisfied, less than 1%. Conclusion ① Most of the pregnant women who were at high risk of screening for Down’s syndrome in Xicheng District Hospital of Beijing were able to further prenatal counseling and were more satisfied with counseling. ② Down’s sign screening for high-risk pregnant women, further check the amniocentesis chromosomal ratio is not high, missionary work needs to be further strengthened.