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目的评估复杂先天性心脏缺陷患儿手术治疗的生活质量。方法对10例经手术治疗的复杂心脏缺陷患儿体格发育[使用体质量、身高标准差记分法(SDS)]、易出现征象和求学入托情况进行综合评估。结果体质量SDS:9例患儿低于参照人群平均值,1例高于参照人群平均值;身高SDS:10例均低于参照人群平均值;临床表现有发绀2例,气促9例,心脏听诊均有杂音;8例已到上学入托年龄患儿在家待学。结论复杂先天性心脏缺陷患儿手术治疗后生活质量低下,其防治重点在于出生前干预。
Objective To assess the quality of life in children undergoing surgical treatment of complex congenital heart defects. Methods A total of 10 children with complicated heart defects treated by surgery were assessed for their physical development (body mass, height standard deviation scoring (SDS)), symptoms and enrollment. Results Body mass SDS: 9 cases were lower than the average reference population, 1 case higher than the average reference population; height SDS: 10 cases were lower than the average reference population; clinical manifestations of cyanosis in 2 cases, 9 cases of shortness of breath, Heart auscultation has murmur; 8 cases have been to school children at home to study. Conclusion The quality of life of children with complicated congenital heart defects after operation is low, and the prevention and treatment of them focus on the intervention before birth.