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目的:了解青年患者发生癫痫后经历病耻感的真实体验，为临床护理人员对其进行针对性护理干预提供理论依据。方法:采用目的性抽样法，于2019年9月—2020年4月选取上海某三级甲等医院神经科的青年癫痫患者12例为研究对象。采用描述性质性研究设计，通过半结构式访谈提纲对患者进行深度访谈。采用主题分析法分析资料。结果:提炼出3个主题，即病耻感体验（羞耻感、被歧视感、绝望感）、病耻感危害（社交恐惧、自杀倾向、婚姻关系较差、工作消极）及病耻感应对。结论:青年癫痫患者存在较强烈的病耻感且病耻感对他们造成了较大的危害，但他们却无法应对病耻感，因此需要临床护理人员充分关注青年癫痫患者的病耻感，及时为其提供护理干预。“,”Objective:To explore the real experience of adults experiencing stigma after epilepsy, so as to provide a theoretical basis for clinical nurses to carry out targeted nursing interventions.Methods:From September 2019 to April 2020, purposive sampling was used to select 12 adults with epilepsy from the Department of Neurosurgery of a ClassⅢ Grade A hospital in Shanghai as the research object. The descriptive and qualitative research design was adopted to conduct in-depth interviews with patients through a semi-structured interview outline, and thematic analysis method was used to analyze the data.Results:Three themes were extracted, namely, stigma experience (including shame, discrimination and despair), stigma hazards (including social fear, suicidal tendency, poor marriage and negative work), and stigma induction.Conclusions:Adults with epilepsy have strong stigma and the stigma has caused greater harm to them, but they cannot cope with the stigma. Therefore, it is necessary for clinical nurses to pay full attention to the stigma of adults with epilepsy and provide them with the nursing intervention in time.