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欧洲脑瘫监测组织(SurveillanceofCerebralPalsyinEurope,SCPE)协作网络的主要目的是建立欧洲脑瘫病例的中央数据库。对脑瘫患病率变化趋势的监控有利于对脑瘫危险因素的研究以及提高脑瘫患儿的生活质量。在脑瘫多中心协作登记工作中,为了准确一致地鉴定脑瘫病例,研究人员采用明确、统一的脑瘫定义。SCPE协作组发现每1000个存活儿中脑瘫的患病例为1.5～3例。在1980至1996年间的出生组群中(n=9128),53.9%的脑瘫患儿为双侧痉挛性脑瘫,31.0%的为单侧痉挛性脑瘫,6.6%为运动障碍,4.1%为共济失调。在脑瘫患儿中,20.4%患儿出生体重不足1500g,而25.5%的孕龄不足32周。29.5%的脑瘫患儿出现了智力障碍(IQ<50)。不能步行(甚至在协助下)的脑瘫患儿比例为30.3%。12.5%的脑瘫患儿出现了严重的视力缺损。做好登记工作有助于了解脑瘫流行病学的特征,是进行脑瘫流行病学研究的一种最佳方式。
The primary goal of the Surveillance of Collapsing Sururillance Collaboration Network (SCPE) is to establish a central database of cases of cerebral palsy in Europe. Monitoring of the trend of cerebral palsy prevalence is conducive to the study of risk factors for cerebral palsy and improve the quality of life of children with cerebral palsy. In the multi-center collaborative registration of cerebral palsy, in order to accurately and consistently identify cases of cerebral palsy, the researchers used a clear and uniform definition of cerebral palsy. The SCPE Collaboration found 1.5 to 3 cases of cerebral palsy per 1000 live births. In the birth cohort between 1980 and 1996 (n = 9128), 53.9% of children with cerebral palsy had bilateral spastic cerebral palsy, 31.0% had unilateral spastic cerebral palsy, 6.6% were dyskinesia, and 4.1% Disorder. Children with cerebral palsy, 20.4% of children born less than 1500g birth weight, while 25.5% of the gestational age less than 32 weeks. 29.5% of children with cerebral palsy have mental retardation (IQ <50). The proportion of children with cerebral palsy who can not walk (even with assistance) is 30.3%. 12.5% of children with cerebral palsy developed severe visual impairment. Doing a good job registering helps to understand the characteristics of cerebral palsy epidemiology and is the best way to carry out epidemiological studies of cerebral palsy.