勇敢抉择:倾听世界的最后30天

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  失而复得是幸福,有时也是奢望。得而将失呢?它可以是悲痛,也可以是新的开始。如果一个月后你将永远失聪,你会怎样度过这宝贵的30天?为大家献上一个感人的故事,希望大家即使面对困境,也不要放弃希望,正如歌词所说:“假如你认为你不曾得到胜利,你就很难改变失败的方式……”
  
  Now to the inspiring story of a young woman faced with a difficult 1)diagnosis. The surgery she needed to save her life would cause her to lose her hearing forever. So how would you spend your last days being able to hear the world? Jessica Stone did it, with bravery and grace.
  
  (Music) I taste it, taste it, love so sweet. And all of it was lost on me…
  
  Imagine a 2)symphony of sounds that make up your life, your favourite song, your
  family’s laughter, your dog. Now imagine counting down the weeks, days, hours until every sound
  disappears.
  Jessica: Maybe, at a loss for emotion, freaked out actually. To be very 3)blunt, freaked out.
  Surgery has been a fact of life for 23-year-old Jessica Stone since she was a little girl. But it wasn’t until she was 15 that doctors were able to put a name to her disease: neurofibromatosis注1,
  a rare genetic disorder that causes 4)benign
  tumors to grow along her nervous system.
  Jessica: The diagnosis was, you know, pretty…pretty much 5)a kick in the gut.
  Over the years Jessica has had more than 20 surgeries to remove the tumors.
  Mrs. Stone: Since this whole thing started eight years ago, I wanna 6)crawl up, a lot of days, and cry and I can’t because…I can’t do it because she doesn’t do it.
  Samantha (Jessica’s sister): Her humor has
  always found a way to make her through and she is just a beautiful person inside and out.
  She already lost the hearing in her left ear and then this winter 7)devastating news: there is a tumor pressing against her brain stem that has to come out. And the operation that will heal her will also leave her deaf.
  Mrs. Stone: You do a surgery that will leave you completely deaf or you take the risk of just
  stroking注2 one day and dying. And that…that was her choice.
  Jessica: The deafness thing, I will only, ya, I will find some 8)funky, 9)quirky way to make it work for me to…you know, be the…the person in the family that just like, “Wow, you know, she’s deaf but she just does it so well!” …Today marks thirty days in count of my big surgery…
  And so in the month before surgery, Jessica sets out to record the sounds that make up her world.
  Jessica: Dig, Doby, dig for gold.
  Playing her 10)bongos, making her morning 11)smoothies. The hope is one day these images will remind her of the sounds she can no longer hear.
  
  (Music) It’s hard to change the way you lose, if you think you’ve never won…
  
  She practices sign language by learning to sign her favourite song All We Are by Matt Nathanson. Just three weeks before surgery, she gets to meet Nathanson at his concert, the last one she will ever hear.
  Jessica: On one hand it’s great to meet the person; on the other hand, you know, I am never gonna hear him sing again. So, you know, it was definitely an emotional thing last night.
   With one week left, she takes in the gentle roar of the wind and waves of the beach.
  Jessica: Oh, it’s gorgeous. Listen to those winds.
  And then all too soon the day of surgery is here.
  Jessica: It has been a long 30 days and, yeah, very long, very hard.
  Mrs. Stone: We talked and laughed and all kinds of things the night before. We wanted to get every minute in, and you…nobody wanted to go to bed and then all of a sudden it’s 6 a. m. and you’re at the hospital.
   That morning in the hospital, tense emotional moments, one last conversation. (Mrs. Stone says “I love you” to Jessica). A final “I love you” and listening one last time to her favourite song as she is wheeled into the operating room.
  
  (Music) In the end, the words won’t matter…
  
  After 13 hours of surgery – relief; doctors tell Jessica’s family the tumor is out and she is doing well. The next morning – the new reality. Jessica’s first conversation without sound.
   Mrs. Stone: (makes gestures to Jessica) Lot? (nods at Jessica’s gesture) A little.
  
  现在为你送上一个鼓舞人心的故事—一位年轻女性面临一个艰难的诊断。这个能让她保住性命的手术将会导致她永远丧失听力。那么,你会如何度过倾听世界的最后时光呢?杰西卡·斯通以勇气欣然面对。
  
  (音乐)我品尝着,品尝着,爱是如此甜蜜。所有的一切都渐渐离我而去……
  
  设想一下,这是一首组成你的生命的交响乐—你最喜爱的歌曲、你家人的笑声、你的狗狗的叫声。现在再试想一下,假如你要倒数着剩下多少周、多少天、多少小时,直到每一个声音完全消失。
  杰西卡:也许,我感觉到情感上的缺失,真的吓坏了。很坦白地说,我真的被吓坏了。
  对于23岁的杰西卡来说,自小时候开始,手术就是她人生的一部分。然而直到她15岁时,医生才能确定她所患的病症的名称:神经纤维瘤病。这是一种罕见的基因紊乱,会导致良性肿瘤沿着她的神经系统生长。
  杰西卡:诊断的结果是,你知道,非常……震惊得令人发痛。
  这些年来,杰西卡已经接受了超过20个手术来清除肿瘤。
  斯通太太:自从八年前确诊至今,我真想振作地爬起来,很多时候又想痛哭一场,但是我不能哭,因为……因为她自己从不哭,我更不能哭。
  萨曼莎(杰西卡的姐姐):一直以来,她的幽默帮助她度过了这些难关。无论是内在还是外表,她都是一个美丽的女孩。
  她的左耳已经失去了听觉,然而今年冬天传来了一个毁灭性的消息:在她的脑中有一个挤压着她的脑干的肿瘤需要去除。这个能治愈她的手术同时也将夺去她的听力。
  斯通太太:要么你去动一个会让你丧失听力的手术,要么你得承担在某一天突然中风然后死去的风险。这……这就是她的
  选择。
  杰西卡:对于变成聋子这个问题,我只会,是的,我会用自己独有的特殊方式来面对,使它不至于影响我……你知道,成为……家里这样的一员:“哇,你知道,虽然她聋了,但她能如此坦然地面对!”……今天是这个重大手术倒数开始的第30天……
  就这样,在手术前一个月,杰西卡开始将组成其世界的声音记录下来。
  杰西卡:挖,杜比,挖金子啦。
  她击打着自己的小鼓,早晨和家人开玩笑逗乐。她希望有朝一日,这些影象能让她想起那些再也无法听到的声音。
  
  (音乐)假如你认为你不曾得到胜利,你就很难改变失败的方式……
  
  她学习用手语来“唱”她最喜欢的歌曲《我们就是一切》,以此作为手语练习。这首歌是马特·纳德逊演唱的。手术前三周,她去听纳德逊的演唱会并见到他本人,这是她能听到的最后一场演唱会了。
  杰西卡:一方面,能见到他我真的非常高兴;另一方面,你知道,我以后再也听不到他唱歌了。因此,你知道,昨晚真的让人很伤感。
  只剩下一周时,她录下了微风轻轻的吹拂和海浪拍打沙滩的声音。
  杰西卡:喔,太壮观了。听听这些风声。
  然后,一切似乎转眼就过去了,到了动手术的日子。
  杰西卡:这30天很长,是的,真的很长,很艰难。
  斯通太太:手术前一晚,我们一直在聊天,尽情大笑,做各种各样的事情。我们想好好度过每一分钟,并且你……没有人愿意上床睡觉,接着,忽然就到了早上6点,你已经达到医院了。
  在医院那个早上,充满紧张情绪的时刻,最后一次谈话。(斯通太太对杰西卡说:“我爱你。”)伴随着最后一句“我爱你”,最后听一遍她最喜欢的歌曲,她被推进了手术室。
  
  (音乐)到了最后,言语已经不再
  重要……
  
  经过13个小时的手术,(大家)都松了一口气;医生告诉杰西卡的家人,肿瘤已经清除,她现在情况良好。到了第二天—要面对新的现实了。这是杰西卡第一次没有声音的对话。
  斯通太太:(对杰西卡打手势)(疼得)很厉害?(看着杰西卡的手势点头)一点点。
  
  看完本文,你的感受如何?相信很多同学都看过海伦·凯勒的《假如给我三天光明》(Three Days to See)。那部脍炙人口的作品浅显易懂,表达了作者对光明的极至渴望。同学们不妨来个换位思考,当你面对本文主人公这样的遭遇时,你会用怎样的方式来度过这倾听世界的最后30天呢?把它写下来,和同学朋友们
  分享吧。
  


  

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