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目的介绍一套新的肌萎缩侧索硬化(amyotrophic lateral sclerosis,ALS)自评量表。方法综合目前各种常用ALS功能量表及自评量表,结合实际工作经验及数字疼痛分级法,制定了ALS自评量表。结果ALS自评量表共分3大项18小项,采用10分制,正常为10分,极差为0分,总分180分。自评量表包括:①延髓功能:语言、吞咽、口水、伸舌;②肢体功能:左上肢运动、左手运动、右上肢运动、右手运动、左下肢运动、右下肢运动、躯干运动、抬头、行走、爬楼;③其他:呼吸、肌张力、疼痛、肌肉不适感。结论ALS自评量表专门用于ALS患者,能够客观、灵敏评定患者功能,简便实用、费时短。
Objective To introduce a new self-rating scale of amyotrophic lateral sclerosis (ALS). Methods Based on the current ALS functional scales and self-rating scales, combined with practical work experience and digital pain grading method, ALS self-rating scale was developed. Results The ALS self-rating scale was divided into 3 major items and 18 items, with 10 points, normal 10 points, very poor 0 points, a total score of 180 points. Self-rating scale includes: ① medulla oblongata function: language, swallowing, saliva, tongue; ② limb function: left upper limb movement, left hand movement, right upper limb movement, right hand movement, left leg movement, right lower limb movement, Walking, climbing stairs; ③ other: breathing, muscle tension, pain, muscle discomfort. Conclusion The ALS self-rating scale is designed for patients with ALS and can objectively and sensitively evaluate the patient’s function, which is simple, practical and time-consuming.